S2 E4 Angie interviews Stacy Smith, who is recovering from a suspected autoimmune condition

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Welcome to The Autoimmune Wellness Podcast Season 2! We’ve created this podcast as a free resource to accompany our book, The Autoimmune Wellness Handbook: A DIY Guide to Living Well with Chronic Illness.

Season 2 Episode 4 is all about how to start the work and begin healing, even without a diagnosis. It’s our second interview episode of the season and in it, Angie sits down with her friend Stacy Smith to discuss how Stacy has managed an unidentified autoimmune condition for nearly 20 years.

Angie and Stacy dig into how Stacy came to terms with her condition, how she went from vegan fitness competitor to AIPer, how to find your “best fit” doctor, steps toward self-empowerment, and much more. Scroll down for the full episode transcript.

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Full Transcript:

Mickey Trescott: Welcome to the Autoimmune Wellness podcast, a complimentary resource for those on the road to recovery. I’m Mickey Trescott, a nutritional therapy practitioner living well with autoimmune disease in Oregon. I’ve got both Hashimoto’s and Celiac disease.

Angie Alt: And I’m Angie Alt, a certified health coach and nutritional therapy consultant, also living well with autoimmune disease in Maryland. I have endometriosis, lichen sclerosis, and Celiac disease. After recovering our health by combining the best of conventional medicine with effective and natural dietary and lifestyle interventions, Mickey and I started blogging at www.Autimmune-Paleo.com, where our collective mission is seeking wellness and building community.

Mickey Trescott: This podcast is sponsored by The Autoimmune Wellness Handbook; our co-authored guide to living well with chronic illness. We saw the need for a comprehensive resource that goes beyond nutrition to connect savvy patients, just like you, to the resources they need to achieve vibrant health. Through the use of self assessments, checklists, handy guides and templates, you get to experience the joy of discovery; finding out which areas to prioritize on your healing journey. Pick up a copy wherever books are sold.

Angie Alt: A quick disclaimer: The content in this podcast is intended as general information only, and is not to be substituted for medical advice, diagnosis, or treatment. Onto the podcast!

Topics:
1. Stacy’s diagnosis story [2:35]
2. Coming to terms with the diagnosis [7:30]
3. Support of friends and family [10:38]
4. First discovering it’s autoimmune [12:34]
5. Finding your best fit doctor [15:58]
6. First steps towards self-empowerment [21:36]
7. Greatest dietary and lifestyle impact of AIP [27:52]
8. Lowest and highest points of Stacy’s journey [34:50]
9. Stacy’s present health situation [37:29]
10. Tips for beginning the journey [41:29]

Angie Alt: Hi everyone! Welcome back to Autoimmune Wellness podcast season 2. This is Angie, and today I’m interviewing Stacy Smith of Viridis Wellness, LLC. She is a fellow nutritional therapy consultant, and an Instagrammer extraordinaire. If you are not following her at Viridis Wellness on Instagram; you should definitely pop in there. She shares beautiful, very informative posts on the daily. She’s a much better Instagrammer than I am.

We have gotten a lot of feedback that you guys find it helpful to hear from folks who have taken on the healing journey in real life. So today, we’re going to be sharing a little bit of Stacy’s story. Thank you, Stacy, for joining us from the Midwest. Are you ready to get started?

Stacy Smith: I am. Hey Angie, how’s it going to day?

Angie Alt: It is going pretty good. There’s always way too much to do in life.

Stacy Smith: So true.

Angie Alt: But I am managing it somehow. {laughs}

Stacy Smith: So true.

1. Stacy’s diagnosis story [2:35]

Angie Alt: So, let’s just jump right in. I think it’s always good for folks to kind of tell their diagnosis story, and to kind of share what that part of the journey was like. One of our first questions that we always ask people is, what was the first symptom you noticed of your autoimmune disease? What was the first thing that popped up that made you go; “Hmm. I better investigate this?”

Stacy Smith: Something’s not right?

Angie Alt: Yeah.

Stacy Smith: Yeah. In my case, that would be harkening all the way back to 1998, when I moved to the Midwest from California. My first symptom was definitely severe fatigue, and that’s the one that I’m still working on today, many years later.

Angie Alt: Ok. Ok. Yeah, there should be a total different word to describe fatigue when it’s autoimmune fatigue. It’s on a whole other level.

Stacy Smith: Absolutely. So that should be the word that we make up this year.

Angie Alt: Right. {laughs}

Stacy Smith: {laughs}

Angie Alt: The word of 2017.

Stacy Smith: That’s right. That’s right. So yes; I went from being very healthy, very active at age 20, to completely debilitated, couldn’t get out of bed, and that was definitely tough at the time.

Angie Alt: Yeah. Ok. How long did it take, from noticing that first system, that really extreme fatigue, until you got an actual diagnosis?

Stacy Smith: You know, I still don’t have a diagnosis to this day. So I would say that that level of fatigue waxed and waned between 1998 and 2013. I would call that my silent autoimmunity period, which was quite long. And in 2013, I had this constellation of events happen in my life all at the same time. I switched jobs, I was working 80 hours a week at a very fast paced finance firm. I had someone in my family with whom I was close pass away. I had some issues in my relationship. I was training to compete in fitness; so I would say I really kind of pulled the trigger on the autoimmunity at that time; became very ill. I saw three different rheumatologists at the time. One told me, “You definitely have lupus.” One said, “You absolutely do not have lupus.” And another said, “You have undifferentiated connective tissue disease, which will probably turn into lupus.”

So with lupus, as with many autoimmune diseases, it’s obviously very common to take an extraordinarily long time to reach a diagnosis, and to receive conflicting information along the way. So, just the past month, I have been seeking out additional information. Decided I was going to find a new rheumatologist; interviewed several, and was told again, by...