Living With Cystic Fibrosis

Living With Cystic Fibrosis

Living with cystic fibrosis: the challenges and triumphs along the way. Live-Breathe-Inspire

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Avsnitt(208)

Bike to Breathe

Bike to Breathe

Bike to Breath is coming up quickly (Monday the 21st of September through Friday the 25th).  Two friends of the Bonnell Foundation, and the CF Community are getting on their bikes and riding from Bost...

18 Sep 202025min

CF Get Loud, the Canadian perspective.

CF Get Loud, the Canadian perspective.

Beth Vanstone talks about how a CF diagnosis thrust her into the world of advocacy.  The two Moms (Laura and Beth) quickly find they have so much in common, from victories to challenges, even though t...

10 Sep 202041min

CF Mom Tribe

CF Mom Tribe

Laura Bonnell (Detroit), Kat Porco (Montana), Jen Caruso (Delaware) and Siri Vaeth (California) have have 5 children with cystic fibrosis between them. The kids are ages 14 to 25 years old.  This CF T...

15 Maj 202048min

CF Foundations: from California to Michigan working together

CF Foundations: from California to Michigan working together

I am so proud to bring you our CF partners from around the Country, (Siri Vaeth, CFRI, Inc., Lee Becker and Jerry Cahill, Boomer Esiason Foundation, Brian Callanan, CFLF and Emily Schaller, Rock CF Fo...

8 Maj 202046min

The Bonnell girls talk CF: from London, England to Detroit

The Bonnell girls talk CF: from London, England to Detroit

The reason the Bonnell Foundation began was because I had two daughters with cystic fibrosis. This episode is my girls perspective. They live life to the fullest.  They both traveled to Nicaragua for ...

1 Maj 202027min

Project CF Spouse

Project CF Spouse

When you think about cystic fibrosis, you probably think about the patient, and the parents who take care of them until they're adults.  But what about a patient's spouse or partner? When a person sta...

3 Mars 202015min

Translate Bio, Dr Ann Barbier

Translate Bio, Dr Ann Barbier

Resources:Translate Bio WebsiteThe Bonnell FoundationEmail The Bonnell Foundation Like, subscribe, and comment on our podcasts!Please consider making a donation: https://thebonnellfoundation.org/donat...

21 Dec 201912min

Children's special Health Care Services with Dr. Colleen Barry

Children's special Health Care Services with Dr. Colleen Barry

Resources:The Bonnell FoundationEmail The Bonnell FoundationMichigan Department of Health and Human Services   Like, subscribe, and comment on our podcasts!Please consider making a donation: https://t...

9 Dec 201922min

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