Living With Cystic Fibrosis

Living With Cystic Fibrosis

Living with cystic fibrosis: the challenges and triumphs along the way. Live-Breathe-Inspire

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Avsnitt(210)

Translate Bio, Dr Ann Barbier

Translate Bio, Dr Ann Barbier

Resources:Translate Bio WebsiteThe Bonnell FoundationEmail The Bonnell Foundation Like, subscribe, and comment on our podcasts!Please consider making a donation: https://thebonnellfoundation.org/donat...

21 Dec 201912min

Children's special Health Care Services with Dr. Colleen Barry

Children's special Health Care Services with Dr. Colleen Barry

Resources:The Bonnell FoundationEmail The Bonnell FoundationMichigan Department of Health and Human Services   Like, subscribe, and comment on our podcasts!Please consider making a donation: https://t...

9 Dec 201922min

Dr. Ahmet Uluer

Dr. Ahmet Uluer

For more information please visit the following sites:https://thebonnellfoundation.orghttp://www.childrenshospital.org/directory/physicians/u/ahmet-uluerhttps://www.facebook.com/thebonnellfoundation/ ...

21 Nov 201928min

NIH Director Dr. Francis Collins on Trikafta and CF

NIH Director Dr. Francis Collins on Trikafta and CF

Just over a week after Trikafta (Vertex Pharma) was approved by the FDA, five months ahead of schedule, five thousand people from the CF community were in Nashville, TN to attend the North American CF...

5 Nov 201926min

Singer/Musician Kevf has CF. His story will inspire you, and you'll want to attend one of his concerts.

Singer/Musician Kevf has CF. His story will inspire you, and you'll want to attend one of his concerts.

Karma was at work when Musician Jill Jack called me to say she wanted me to meet a singer/musician named Kevf. His voice was amazing she told me, and by the way, he has cystic fibrosis. I shouldn't b...

30 Juli 201924min

Five Feet Apart and the Story That Inspired It

Five Feet Apart and the Story That Inspired It

The movie Five Feet Apart was inspired by Claire Wineland. The movie’s main character, Stella, showcases Claire’s charismatic and fighting personality. In this honest, raw, and often emotional conver...

28 Mars 201938min

CF Attorney and Patient Beth Sufian

CF Attorney and Patient Beth Sufian

When Beth Sufian was born with Cystic Fibrosis in 1965, there were no CF treatments and no prescriptions for enzymes that she could take to digest her food. Beth has dealt with many CF challenges alon...

19 Feb 201951min

Dylan Mortimer on CF and Art

Dylan Mortimer on CF and Art

Thirty-nine year old Dylan Mortimer embraces God, life and his family while dealing with the reality of waiting for a second double lung transplant. An artist in New York City, Dylan makes beautiful ...

6 Feb 201927min

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