Livingwithxxy

Livingwithxxy

Living with XXY is changing the way the world views Klinefelter syndrome (47XXY). Focusing on community, awareness, and positive traits.

Avsnitt(108)

#28 - Wife of Adult with XXY - Angela Plaisance

#28 - Wife of Adult with XXY - Angela Plaisance

Angela Plaisance is the wife of Charlie Plaisance who was diagnosed with Klinefelter syndrome while trying to build a family together. Angela talks about what it was like from a spouse's perspective upon receiving the news about her husband's diagnosis.

12 Apr 202125min

#27 - Adult with XXY and Girlfriend - Niall Barry

#27 - Adult with XXY and Girlfriend - Niall Barry

In 2015, Niall started researching to find out why he had smaller testicles. After further investigation Niall was certain he had Klinefelter syndrome. When reading information about the possibility of infertility, he was gutted and stopped all research. In 2018 Niall's girlfriend Isabel pushed him to go get tested when he told her about the possibility he might not be able to have children. Niall and Isabel share their story about his diagnosis and life after. Niall and Isabel want others to know everything will be ok, to not let what you read online pull you down straight away. To stay positive, and know there is nothing you cant achieve in life. Thru their personal experience to not ignore it or avoid it and reach out for support.

5 Apr 202150min

#26 - Adults with XXY - Greg Brimhall and Ryan Bregante

#26 - Adults with XXY - Greg Brimhall and Ryan Bregante

Greg Brimhall and Ryan Bregante started talking shortly after Ryan made his first youtube video in 2017. After years of talking they were finally able to meet in person in October of 2020. After recording a podcast together a few episodes ago they both continued to chat. This 50 min episode is raw, unplanned, and full of detailed information. Ryan and Greg are both fully open about their diagnosis and welcome you into their conversation. Enjoy. https://livingwithxxy.org/

29 Mars 202156min

#25 - Adult with XXY and Wife - Ryan and Leah Kuieck

#25 - Adult with XXY and Wife - Ryan and Leah Kuieck

Ryan now 31, learned about his Klinefelter syndrome diagnosis around the age of 10-12 years old. His parents found out before he was born. Ryan and Leah met online and dated for 2 years before getting engaged and later married. Ryan is a successful welder by trade and now works for a machine shop that paid for him to go back to trade school. He loves working with his hands, loves to hunt, fish, and spend time being a father. Ryan bought his first house in Michigan at the age of 26 and has plans to pay it off by the time he is 45. www.livingwithxxy.org

22 Mars 202143min

#24 - Adult with XXY - Gareth Landy (Ireland)

#24 - Adult with XXY - Gareth Landy (Ireland)

Gareth Landy is our first person on the podcast from Ireland. Gareth was diagnosed with Klinefelter syndrome while trying to start a family with his wife who also has multiple sclerosis. He goes in-depth about how he received the gut-wrenching news from the doctor and going through the long and expensive process of sperm extraction via Micro-TESE. After hitting a dead-end, Gareth remained positive. With the help of a sperm donor, Gareth and his wife went thru 3 rounds of IVF before falling pregnant with twins. He is proud to be Living With XXY and would do it all over again if he had to. He has biked the entire length of Ireland to raise money for kids with cancer and has ran 3 full marathons. https://livingwithxxy.org/

15 Mars 202153min

#23 - Adult with XXY - Greg Brimhall

#23 - Adult with XXY - Greg Brimhall

Greg Brimhall found out at the age of 15 when his family decided to switch primary care doctors. After finding out his parents told him not to say anything or talk about his condition. Two years later at 17, he ignored his parent's suggestion and learned self-acceptance. As life went on Greg pushed himself to learn more and better understand his own condition. Greg has a very good perspective about living with Klinefelter syndrome. You can find Greg on Instagram @titan_o_terrror Our website is www.livingwithxxy.org

8 Mars 202158min

#25 - Adult with XXY and Wife - Brandon and Danae

#25 - Adult with XXY and Wife - Brandon and Danae

Brandon age 36 found out about his diagnosis at the time of his engagement at 32 years old.  He had a work-related accident that gave him a hernia.  After the ultrasound tech noticed he had smaller testicles, he went thru testing to find out he had XXY.  Brandon talks about how he just feels like any other guy out there and how XXY has not held him back from living life.  They talk about their quest to enjoy life and adopt children when and if that time comes for them.  Danae offers some insight from a spouse's perspective.  This is our first couple on the show and we look forward to having many more.

1 Mars 202143min

#21 - Adult with XXY - Dan Mooney

#21 - Adult with XXY - Dan Mooney

Dan Mooney was diagnosed with Klinefelter syndrome at the age of 19 when he had a hernia and his doctors noticed his testicle size was really small. After diagnosis and due to lack of information Dan continued to live his life. At the age of 38, he realized his testosterone was under 200 and started injections once a week in his legs. Dan talks about how testosterone has helped him with his mental health and being able to build muscle. He resides in Oregon where he is a full-time graphic designer and runs his own marketing company. https://www.mooney-marketing.com/ Instagram: mooneyinredmond

22 Feb 202151min

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