Livingwithxxy

Livingwithxxy

Living with XXY is changing the way the world views Klinefelter syndrome (47XXY). Focusing on community, awareness, and positive traits.

Avsnitt(108)

#12 - Father of Boy with XXY

#12 - Father of Boy with XXY

The father of a two-year-old boy shares his recent journey of fully accepting and embracing his son's unique personality & interests. He opens up about how his lifelong thoughts about fatherhood limited his relationship with his son. He learned to embrace his son having Klinefelter syndrome.  www.livingwithxxy.org

9 Aug 202028min

#11 - Adult with XXY - Stefan Schwarz

#11 - Adult with XXY - Stefan Schwarz

Stefan was diagnosed with Mosaic Klinefelter syndrome in 1996 at 26 years old. He has been a strong advocate since his diagnosis and has attended many conferences over the years meeting a wide range of people with Klinefelter syndrome and all different age groups. We are glad to have him on the show. Here is his website. You can also contact Stefan on Facebook.

11 Juli 202049min

#10 - Mother of Boy with XXY - Kat Pacheco

#10 - Mother of Boy with XXY - Kat Pacheco

This episode is all about nature, free play, and how it has helped Kat's son Leo who is three years old and has XXY. I began thinking over our journey and our introduction to Free Forest School. Free Forest School is an international organization where children and caregivers meet in nature with no toys for unstructured and child-led play. https://www.freeforestschool.org/ https://livingwithxxy.org/

25 Juni 202042min

#09 - Awareness for XXY - Ryan Bregante

#09 - Awareness for XXY - Ryan Bregante

Living with xxy is a Nonprofit 501.c.3 Charitable Organization raising awareness about Klinefelter syndrome - 47 xxy. We are here to help people all over the world learn more about this condition. By listening to our podcast you will hear voices of our community share their personal stories about overcoming challenges they faced and rising above the outdated information. More information can be found on our website. https://livingwithxxy.org/

15 Juni 20202min

#08 - Adult with XXY - Evan Flores

#08 - Adult with XXY - Evan Flores

Evan Flores was born and raised in NYC his entire life. He never left and met his amazing wife Sabrina on August 19th, 2010 After 3 to 4 years of trying to have a family, Evan and Sabrina decided to go in for testing to see why nothing was working. After testing, Evan was diagnosed with Klinefelter syndrome and was in utter shock. “How is it even possible for someone to have an extra chromosome,” he said. Evan and Sabrina did Micro TESE and IVF in the same go and he is blessed with a miracle baby boy named Joshua. Joshua is 7 months old and thriving and Evan is his biological father. Since Evan was born in NYC he understands that having a hustle is part of life. Selling cable door to door as his full-time job, Evan also is the owner of a clothing company inspired by God called Saved. You can feel his love for vintage clothing when he talks so passionately about it. Evans work can be found www.savedco.com

11 Juni 202033min

#07 - Adults with XXY - Geoff Kruck (Australia)

#07 - Adults with XXY - Geoff Kruck (Australia)

Geoff Kruck 42 years old, lives just north of Melbourne, Australia. Geoff found out the hard way he had Klinefelter syndrome. When he got married to his wife, he didn’t have an overbearing desire to have children. Geoff was just thrilled he was marrying his best friend. He thought starting a family would come naturally down the road. Geoff says "you just assume it’s going to happen for you when you’re ready." Geoff was featured in Healthy Male Australia. Living with XXY is a Nonprofit Charitable Organization

2 Juni 202050min

#06 - Parents of Adult with XXY - Richard and Rosalie Bregante

#06 - Parents of Adult with XXY - Richard and Rosalie Bregante

Richard and Rosalie Bregante share information on what it was like to raise their son, who was born in 1985 when information for Klinefelter syndrome was very limited.  https://livingwithxxy.org/

20 Maj 202030min

#05 - Adults with XXY - Andrew Curry

#05 - Adults with XXY - Andrew Curry

Andrew was diagnosed with Klinefelter syndrome at the age of 16 after waking up one morning saying his testicles were hurting. A trip to the urologist and several doctor visits later he found out why. He talks about what it was like to be diagnosed, being developmentally behind his peers, and how he caught up with life at 22. He is actively involved with raising awareness online and getting his bachelor's degree in cybersecurity.

14 Maj 202035min

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