Make Visible: ME/CFS, Long Covid, POTS, EDS, Fibro & MCAS Explored

Make Visible: ME/CFS, Long Covid, POTS, EDS, Fibro & MCAS Explored

Shining a light on invisible illness.

Emily Kate Stephens, journalist and Long Covid sufferer, discusses the latest research and insights with the world’s leading experts, scientists and healthcare professionals. Including ME/CFS, Long Covid, Ehlers Danlos (EDS), Fibromyalgia, POTS, Mast Cell Activation Syndrome (MCAS), Chronic Lyme, Infection Associated Chronic Conditions (IACCs) and more, we dive into the science of energy-limiting, chronic illness, whilst providing patients, caregivers and medical professionals with practical tools to diagnose, understand and manage their conditions.

From pacing to supplements, repurposed drugs to biomarkers, therapies to advocacy groups, we share the work that is being done for and by the community, helping patients navigate their symptoms, emotions and lives.

Join us every two weeks.

To find out more about the work that Visible is doing, using wearable technology to measure and manage complex chronic illness, visit our website at:

Make Visible

@visible.health

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Avsnitt(41)

#24 Ehlers Danlos Syndrome & Orthostatic Intolerance in Chronic Fatigue conditions with Dr Peter Rowe

#24 Ehlers Danlos Syndrome & Orthostatic Intolerance in Chronic Fatigue conditions with Dr Peter Rowe

Dr Peter Rowe is a leading voice for adolescents and young people with Ehlers Danlos Syndrome (EDS) and Fatigue-related conditions.  An expert in orthostatic intolerance (OI), which is prevalent in ne...

31 Okt 202545min

#23 Improving quality of life - managing P.E.M. and moving towards stability with O.T. Amy Mooney

#23 Improving quality of life - managing P.E.M. and moving towards stability with O.T. Amy Mooney

Amy Mooney’s aim is to improve the quality of life for her patients.  She is an occupational therapist specialising in the treatment of conditions that cause post-exertional malaise (PEM) and their co...

30 Sep 20251h 3min

#22 Vagus Nerve & inflammation: the body’s healing reflex with Dr. Kevin Tracey

#22 Vagus Nerve & inflammation: the body’s healing reflex with Dr. Kevin Tracey

Dr. Kevin Tracey is a pioneer in understanding the molecular basis of inflammation, and identifying the way in which neurons control the immune system via the Vagus Nerve. A neurosurgeon, scientist an...

15 Sep 202549min

#21 Living life with energy-limiting conditions - Personal wins & perspective, with Gez Medinger & Emily Kate Stephens

#21 Living life with energy-limiting conditions - Personal wins & perspective, with Gez Medinger & Emily Kate Stephens

In a change to our usual format, this week Emily Kate Stephens sits down with fellow journalist, podcaster and chronic illness sufferer, Gez Medinger to explore their personal anecdotes and discuss th...

27 Aug 202540min

#20 Practical guide to pacing and managing Post Exertional Malaise (PEM) with Dr Melanie Hoppers, Bateman Horne Center

#20 Practical guide to pacing and managing Post Exertional Malaise (PEM) with Dr Melanie Hoppers, Bateman Horne Center

Bateman Horne Center internist and paediatrician, Dr Melanie Hoppers, has always been driven to approach her patients’ treatment with a holistic strategy, combining first line medicines with lifestyle...

14 Aug 20251h 4min

#19 Female hormones and the immune system, with Abigail Goodship

#19 Female hormones and the immune system, with Abigail Goodship

Analysis of wearable data gathered from the Visible app found that symptoms in Long Covid and ME/CFS fluctuated considerably in-line with the menstrual cycle, in a new study from Imperial College (cur...

30 Juli 202547min

#18 Leading research, delivering hope: The Open Medicine Foundation’s mission with Linda Tannenbaum

#18 Leading research, delivering hope: The Open Medicine Foundation’s mission with Linda Tannenbaum

The Open Medicine Foundation is the world’s largest non-profit aimed at diagnosing, treating and preventing complex chronic disease. This week, founder and CEO Linda Tannenbaum joins Emily Kate Stephe...

11 Juli 20251h 5min

#17 PEM: measuring the threshold and understanding the cause with Dr. Rob Wüst

#17 PEM: measuring the threshold and understanding the cause with Dr. Rob Wüst

What is the threshold over which PEM is induced in chronic illness? This is a hugely important question for sufferers, and one for which Rob Wüst is trying to find an answer. Assistant Professor in Mu...

30 Juni 202538min

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