Dealing with diagnosis
In the first episode of series three of the PSPA Podcast, we speak to Anna from Rare Minds. Anna helps us to unpick the complexities of coming to terms with a diagnosis of PSP or CBD, for both the per...
24 Feb 202529min
Living with PSP
Paul Johnson shares an insight into his first PSP symptoms, his diagnosis and how his interests have changed since his diagnosis.
19 Dec 202418min
Episode 6: Research update with Dr Ed Jabbari
In this episode, PSPA Research Coordinator, Megan Hodgson talks to Dr Ed Jabbari. Dr Jabbari has been working in the field of PSP & CBD research since 2016, when he became the Sara Koe Research Follow...
7 Aug 202421min
Episode 5: PSP & CBD Awareness Week with Rebecca Packwood and Mark Jackson
In this episode, CEO Rebecca Packwood talks to PSPA's new Director of Policy and Influencing, Mark Jackson. Mark shares what his role is and the launch of the #WeCare campaign and how people can help ...
17 Juni 202421min
Episode 4: Becoming a PSPA volunteer with Lavonne McCormack and Sally Reynolds
PSPA Volunteer Coordinator Lavonne McCormack speaks to volunteer Sally Reynolds. Sally shares details of how she become a Support Group volunteer ten years ago. And also how she increased her voluntee...
14 Juni 202416min
Episode 3: PSPA's 30th Anniversary with CEO Rebecca Packwood
2024 is a milestone year for PSPA - it marks 30 years since the charity was registered. In this episode of the PSPA Podcast, CEO Rebecca Packwood shares an insight into what we have planned for this ...
2 Jan 202415min
Episode 2: Diagnosing PSP & CBD with Dr Boyd Ghosh
As rare diseases, we know diagnosing PSP & CBD can be difficult. In the second episode of series two of the PSPA Podcast, we talk to Dr Boyd Ghosh about how PSP & CBD are diagnosed, what the challen...
30 Nov 202322min
Episode 1: Living with CBD
In the first episode of our second series of the PSPA Podcast, we talk to Gilda who has been diagnosed with CBD. Gilda talks about her symptoms, her diagnosis and how she has adapted her home and ho...
7 Nov 202319min
