PSPA Podcast

PSPA Podcast

The PSPA Podcast will provide discussions and information for people caring for someone living with rare brain diseases, PSP or CBD. This podcast is brought to you thanks to the kind support of the Pavers Foundation in memory of Mary Youll.

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Avsnitt(30)

Episode 14 - How the Helpline can help

Episode 14 - How the Helpline can help

Today we’re joined by Jules Brown, PSPA Helpline Manager to talk about the support we can offer to your and your family.

30 Sep 202239min

PSPA Podcast Episode 13 - Support for Young People

PSPA Podcast Episode 13 - Support for Young People

In our 13th episode we speak to Kathryn Embree, the PSPA volunteer who runs our Youth Support Group. Here Kathryn talks about the importance of peer support and the benefits of the group.

11 Aug 202227min

PSPA Podcast Episode 12 - Carers Week with Jacqui Ede

PSPA Podcast Episode 12 - Carers Week with Jacqui Ede

PSPA Carers Support Group facilitator, Jacqui Ede joins us as we celebrate Carers Week and our podcast being live for one year! Jacqui also shares a ten minute relaxation session with listeners at the...

8 Juni 202249min

PSPA Podcast Episode 11 - Relaunching Ed’s Lace with Scott Smith

PSPA Podcast Episode 11 - Relaunching Ed’s Lace with Scott Smith

In this episode we talk to Scott Smith about the inspiration behind his Ed’s Lace Awareness campaign and how he feels about it relaunching in 2022.

23 Maj 202233min

PSPA Podcast Episode 10 - Support for Carers

PSPA Podcast Episode 10 - Support for Carers

In this episode we speak to PSPA’s Director of Engagement, Carol Amirghiasvand, about PSPA’s new carers support groups. PSPA Volunteer Caroline Woodcock also joins us to speak about how her granny ins...

29 Apr 202221min

PSPA PodCast Episode 9 - Taking on a challenge with Katy Butterill

PSPA PodCast Episode 9 - Taking on a challenge with Katy Butterill

Katy Butterill joins us for this episode to share why she chose to take on a walking challenge in honour of her mum, who is living with PSP.

11 Mars 202223min

PSPA Podcast Episode 8 - Advance Care Planning with Ewan Phillips

PSPA Podcast Episode 8 - Advance Care Planning with Ewan Phillips

Ewan Phillips joins us to share his experience of Advance Care Planning with her mum, who was living with a diagnosis of PSP.

1 Mars 202244min

PSPA Podcast Episode 7 Home Adaptations

PSPA Podcast Episode 7 Home Adaptations

OT Julie Cummins joins us for the seventh episode of the PSP podcast to advise about making adaptations in your home. Julie draws from her experience as an OT but also from her personal experience of ...

26 Nov 202142min

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