SMA News & Perspectives

SMA News & Perspectives

Daily, digital coverage of the latest SMA news and perspectives.

Den här podcasten är hämtad från ett öppet RSS-flöde och publiceras inte av Podme. Den kan innehålla reklam.

Avsnitt(446)

Some SMA Patients Unable to Walk Unassisted May Have Trouble Chewing

Some SMA Patients Unable to Walk Unassisted May Have Trouble Chewing

SMA News Today’s multimedia associate, Price Wooldridge, discusses how some Spinal Muscular Atrophy (SMA) patients unable to walk unassisted may have trouble chewing. And to close out SMA Awareness M...

2 Sep 20218min

Behind-the-Scenes of #31DaysofSMA

Behind-the-Scenes of #31DaysofSMA

#InstagramLive​ here: https://www.instagram.com/tv/CTBDgwbBFm5/ Ally Macgregor chats with Kevin Schaefer (@kevinschaefer19), Katie Napiwocki (@wheelprintsalongthewildflowers) and Samantha Przybylski ...

31 Aug 202150min

SMA UK Network Helps Patients Navigate Adulthood

SMA UK Network Helps Patients Navigate Adulthood

SMA News Today’s multimedia associate, Price Wooldridge, discusses an SMA UK network which helps patients navigate adulthood, living longer, attending college, pursuing careers, and traveling more. A...

30 Aug 20218min

Most Parents Surveyed in Japan Support SMA Newborn Screening

Most Parents Surveyed in Japan Support SMA Newborn Screening

SMA News Today’s multimedia associate, Price Wooldridge, discusses newborn screening for Spinal Muscular Atrophy (SMA) in Japan and it’s support by most parents surveyed. Plus, not only does the 31 D...

27 Aug 202111min

SMA Type 1 Affects Sensory Nerves as Children Age, Small Study Shows

SMA Type 1 Affects Sensory Nerves as Children Age, Small Study Shows

SMA News Today’s multimedia associate, Price Wooldridge, discusses how Spinal Muscular Atrophy (SMA) Type 1 affects sensory nerves as children age. Plus, Kevin Schaefer reads a column by Ari Anderson...

25 Aug 202110min

‘Best Possible Outcome’ for SMA? Newborn Screening, Then Zolgensma

‘Best Possible Outcome’ for SMA? Newborn Screening, Then Zolgensma

SMA News Today’s multimedia associate, Price Wooldridge, discusses the best possible outcome for infants with Spinal Muscular Atrophy (SMA) is newborn screening, then Zolgensma, according to a cost-ef...

23 Aug 20219min

Zolgensma Helps Mobility of SMA Children in Qatari Real-world Study

Zolgensma Helps Mobility of SMA Children in Qatari Real-world Study

SMA News Today’s multimedia associate, Price Wooldridge, discusses how the gene therapy Zolgensma helps improve mobility in young children with Spinal Muscular Atrophy (SMA) in a real-world study. Al...

20 Aug 202110min

FDA Lifts Hold on Clinical Trials of Intrathecal OAV-101 & Self-Acceptance and Rejecting Ableism

FDA Lifts Hold on Clinical Trials of Intrathecal OAV-101 & Self-Acceptance and Rejecting Ableism

SMA News Today’s multimedia associate, Price Wooldridge, discusses the FDA lifting its partial hold on clinical trials of Intrathecal OAV-101 for the treatment of Spinal Muscular Atrophy (SMA). Also,...

18 Aug 20216min

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