#88: SMA Awareness Month & 31 Days of SMA 2021
In episode 88, host Kevin Schaefer talks with fellow SMA News Today contributors Michael Morale and Katie Napiwocki. They discuss this year’s 31 Days of SMA campaign, as well as other topics and news ...
17 Aug 202147min
Zolgensma-Evrysdi Combo Likely Beneficial for SMA Type 1
SMA News Today’s multimedia associate, Price Wooldridge, discusses how the Zolgensma-Evrysdi combination is likely beneficial for patients with Spinal Muscular Atrophy (SMA) Type 1. Also, DeAnn Runge...
16 Aug 20219min
Inviting People to Sit at the Table of My Disabled Life & 31 Days of SMA Thus Far
SMA News Today’s multimedia associate, Price Wooldridge, reads the column by Katie Napiwocki, A Wildflower in the Wheelderness, “Inviting People to Sit at the Table of My Disabled Life”. Also, as the...
13 Aug 20219min
Muscular Dystrophy Canada Funds Projects on Newborn SMA Screening
SMA News Today’s multimedia associate, Price Wooldridge, discusses the award of funds by Muscular Dystrophy Canada for Spinal Muscular Atrophy (SMA) newborn screening. Also, Kevin Schaefer reads a c...
11 Aug 20218min
Spinraza Improves Lung Function in SMA Type 2 Child, Report Says
SMA News Today’s multimedia associate, Price Wooldridge, discusses improved lung function with Spinraza in a Spinal Muscular Atrophy (SMA) Type 2 child. Also, As DeAnn Runge awaits the arrival of her...
9 Aug 20217min
Why My Journey With Disability Pride Isn’t Linear & 31 Days of SMA Initiative
SMA News Today’s multimedia associate, Price Wooldridge, reads the column by Alyssa Silva, Life, One Cup at a Time, “Why My Journey With Disability Pride Isn’t Linear”. Also, in recognition of SMA Aw...
6 Aug 20217min
Novartis Stopping Work on Branaplam as Oral SMA Therapy & 31 Days of SMA
SMA News Today’s multimedia associate, Price Wooldridge, discusses Novartis stopping work on the development of Branaplam as an oral treatment for Spinal Muscular Atrophy (SMA). Forums Director Kevin...
4 Aug 20216min
#87: Interview with Allie Williams, Vocal Coach and Disability Advocate
In episode 87, host Kevin Schaefer talks with Allie Williams from Stillwater, Oklahoma. Allie is a vocal coach and she has SMA Type II. She talks about her lifelong musical journey, dealing with acces...
3 Aug 202142min
