SMA News & Perspectives

SMA News & Perspectives

Daily, digital coverage of the latest SMA news and perspectives.

Den här podcasten är hämtad från ett öppet RSS-flöde och publiceras inte av Podme. Den kan innehålla reklam.

Avsnitt(445)

SadBaby Crowdfunding Aims to Help SMA Families & Accessibility, Disability Pride and Success

SadBaby Crowdfunding Aims to Help SMA Families & Accessibility, Disability Pride and Success

SMA News Today’s multimedia associate, Price Wooldridge, discusses SadBaby, an organization raising donations to support children with Spinal Muscular Atrophy (SMA). Also, SMA News Today content crea...

30 Juli 20217min

Partnership Aims to Lower Out-of-Pocket Costs for Rare Disease Meds

Partnership Aims to Lower Out-of-Pocket Costs for Rare Disease Meds

SMA News Today’s multimedia associate, Price Wooldridge, discusses a partnership which aims to lower out-of-pocket costs for rare disease medications. Also, Forums Director Kevin Schaefer reads a col...

28 Juli 20219min

‘Wearable Cyborg’ Helps Improve Walking Ability And Muscle Strength

‘Wearable Cyborg’ Helps Improve Walking Ability And Muscle Strength

SMA News Today’s multimedia associate, Price Wooldridge, discusses how a wearable cybernetic leg significantly improves walking ability for people with neuromuscular disabilities such as Spinal Muscul...

26 Juli 20218min

VRK1 Mutations Were Found in Two Adult-Onset SMA Hispanics & the SSI Restoration Act of 2021

VRK1 Mutations Were Found in Two Adult-Onset SMA Hispanics & the SSI Restoration Act of 2021

SMA News Today’s multimedia associate, Price Wooldridge, discusses how VRK1 mutations were found in two adult-onset Spinal Muscular Atrophy (SMA) Hispanics. In the forums there are a lot of great disc...

23 Juli 20219min

COVID-19 Infection Turns Severe in SMA Type  1 Child & Treating Your Body Right

COVID-19 Infection Turns Severe in SMA Type 1 Child & Treating Your Body Right

SMA News Today’s multimedia associate, Price Wooldridge, discusses how a COVID-19 infection turns severe in a Spinal Muscular Atrophy (SMA) Type 1 child. News article: https://smanewstoday.com/news-po...

21 Juli 202110min

#86: Price Wooldridge, The Voice Behind the SMA Flash Briefings

#86: Price Wooldridge, The Voice Behind the SMA Flash Briefings

In episode 86, host Kevin Schaefer talks with Price Wooldridge from Fort Worth, Texas. Price is a voiceover contributor for the SMA News Today flash briefings, and he lives with a rare autoimmune dise...

20 Juli 202139min

Sma Treatment May Be More Effective by Altering an Underlying Molecule & Having a Service Dog

Sma Treatment May Be More Effective by Altering an Underlying Molecule & Having a Service Dog

SMA News Today’s multimedia associate, Price Wooldridge, discusses how Spinal Muscular Atrophy (SMA) treatment may be more effective by altering an underlying molecule. DeAnn Runge shares what having...

19 Juli 20216min

Spinraza Improves Motor Function in Children And Adults With SMA Type 3 Children

Spinraza Improves Motor Function in Children And Adults With SMA Type 3 Children

SMA News Today’s multimedia associate, Price Wooldridge, discusses how Spinraza improves motor function in Spinal Muscular Atrophy (SMA) Type 3 children. In recognition of Disability Pride Month, D...

16 Juli 202114min

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