SMA News & Perspectives

SMA News & Perspectives

Daily, digital coverage of the latest SMA news and perspectives.

Den här podcasten är hämtad från ett öppet RSS-flöde och publiceras inte av Podme. Den kan innehålla reklam.

Avsnitt(446)

Spinraza Improves Motor Function in Children And Adults With SMA Type 3 Children

Spinraza Improves Motor Function in Children And Adults With SMA Type 3 Children

SMA News Today’s multimedia associate, Price Wooldridge, discusses how Spinraza improves motor function in Spinal Muscular Atrophy (SMA) Type 3 children. In recognition of Disability Pride Month, D...

16 Juli 202114min

Stem Cell Therapy May Benefit Some Type 1 Infants & Disability Pride Month

Stem Cell Therapy May Benefit Some Type 1 Infants & Disability Pride Month

SMA News Today’s multimedia associate, Price Wooldridge, discusses a stem cell therapy which may benefit some Spinal Muscular Atrophy (SMA) Type 1 infants. Also, Kevin Schaefer shares his thoughts on...

14 Juli 20217min

People in UK Urged to Sign Petition Adding SMA to Newborn Screening

People in UK Urged to Sign Petition Adding SMA to Newborn Screening

SMA News Today’s multimedia associate, Price Wooldridge, discusses the UK SMA Newborn Screening Alliance calling on people to take action and sign a petition requesting Spinal Muscular Atrophy (SMA) b...

12 Juli 20218min

US Pediatricians Often Overlook Steps in Diagnosing SMA, Surveys Show

US Pediatricians Often Overlook Steps in Diagnosing SMA, Surveys Show

SMA News Today’s multimedia associate, Price Wooldridge, discusses how many U.S. pediatricians fail to use developmental screening tools in diagnosing Spinal Muscular Atrophy (SMA). Plus, DeAnn Runge...

9 Juli 202114min

Texas Adds SMA to Its Newborn Screening Program

Texas Adds SMA to Its Newborn Screening Program

SMA News Today’s multimedia associate, Price Wooldridge, discusses Texas adding Spinal Muscular Atrophy (SMA) to its newborn screening program. Also, Forums Director Kevin Schaefer reads a column abo...

7 Juli 20217min

#85: Interview With Mikey and Noelle Hazel, Siblings with SMA

#85: Interview With Mikey and Noelle Hazel, Siblings with SMA

In episode 85, host Kevin Schaefer talks with Mikey and Noelle Hazel from Union, New Jersey. Mikey and Noelle are siblings who both have SMA Type II. They talk about growing up with SMA together, comb...

6 Juli 202156min

Japan Approves Evrysdi as First At-home, Oral SMA Treatment

Japan Approves Evrysdi as First At-home, Oral SMA Treatment

SMA News Today’s multimedia associate, Price Wooldridge, discusses Japan’s approval of Evrysdi as the first at-home, oral Spinal Muscular Atrophy (SMA) treatment. Also, DeAnn Runge talks about her qu...

5 Juli 20216min

Major Developmental Milestones Met in Infants, Zolgensma Data Show

Major Developmental Milestones Met in Infants, Zolgensma Data Show

SMA News Today’s multimedia associate, Price Wooldridge, discusses Zolgensma treatment demonstrating major milestones being met in infants with Spinal Muscular Atrophy (SMA). Also, DeAnn shares with ...

2 Juli 202112min

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