SMA News & Perspectives

SMA News & Perspectives

Daily, digital coverage of the latest SMA news and perspectives.

Den här podcasten är hämtad från ett öppet RSS-flöde och publiceras inte av Podme. Den kan innehålla reklam.

Avsnitt(446)

Apitegromab Safely Counters a Muscle Growth Suppressor in Patients With SMA

Apitegromab Safely Counters a Muscle Growth Suppressor in Patients With SMA

SMA News Today’s multimedia associate, Price Wooldridge, discusses how Apitegromab safely counters a muscle growth suppressor in patients with Spinal Muscular Atrophy (SMA). Also, DeAnn Runge has mix...

28 Maj 20219min

Cure SMA Offers US Patients Free Tools to Boost Their Independence & Managing Fatigue With SMA

Cure SMA Offers US Patients Free Tools to Boost Their Independence & Managing Fatigue With SMA

SMA News Today’s multimedia associate, Price Wooldridge, discusses free tools being offered by Cure SMA to boost the independence of Spinal Muscular Atrophy (SMA) patients. Also, Forums Director Kevi...

26 Maj 20217min

Remembering to Prioritize Mental Health & Self-Esteem, Post Vaccination Plans and More

Remembering to Prioritize Mental Health & Self-Esteem, Post Vaccination Plans and More

SMA News Today’s multimedia associate, Price Wooldridge, reads the column by Alyssa Silva, Life, One Cup At a Time, “I’m Remembering to Prioritize My Mental Health”. DeAnn Runge talks about the hot t...

24 Maj 20216min

Neurofilaments May Not Be Biomarker for Older Patients & The New CDC Mask Recommendations

Neurofilaments May Not Be Biomarker for Older Patients & The New CDC Mask Recommendations

SMA News Today’s multimedia associate, Price Wooldridge, discusses how neurofilaments may not be a biomarker for older patients with Spinal Muscular Atrophy (SMA) Type 1. Also, DeAnn Runge discusses ...

21 Maj 20218min

Warning of TMA, Rare Blood Disorder, Added to Zolgensma’s Safety Label & Friendships and SMA

Warning of TMA, Rare Blood Disorder, Added to Zolgensma’s Safety Label & Friendships and SMA

SMA News Today’s multimedia associate, Price Wooldridge, discusses adding thrombotic microangiopathy (TMA) to the list of safety concerns for Zolgensma. Also, Forums Director Kevin Schaefer reads a c...

19 Maj 20219min

#82: Interview with Hawken Miller, Journalist with Muscular Dystrophy

#82: Interview with Hawken Miller, Journalist with Muscular Dystrophy

In episode 82, host Kevin Schaefer talks with Hawken Miller from Newport Beach, California. Hawken is a features writer for SMA News Today’s parent company, BioNews, as well as a columnist for Muscula...

18 Maj 202136min

Sex And The Number of Copies of The SMN 2 Gene Can Influence Age of Onset for SMA Type 3 Patients

Sex And The Number of Copies of The SMN 2 Gene Can Influence Age of Onset for SMA Type 3 Patients

SMA News Today’s multimedia associate, Price Wooldridge, discusses how sex, and the number of copies of the SMN 2 gene influence age of onset for Spinal Muscular Atrophy Type 3 patients. Also, DeAnn ...

17 Maj 202113min

UK NICE Expands Access to Spinraza for SMA Type 3 & The Disappointment of a Jaco Robotic Arm Denial

UK NICE Expands Access to Spinraza for SMA Type 3 & The Disappointment of a Jaco Robotic Arm Denial

SMA News Today’s multimedia associate, Price Wooldridge, discusses how UK NICE expands access to Spinraza for Spinal Muscular Atrophy (SMA) Type 3 patients. Also, DeAnn Runge talks about how disappoi...

14 Maj 20216min

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