Cure SMA Offers US Patients Free Tools to Boost Their Independence & Managing Fatigue With SMA
SMA News Today’s multimedia associate, Price Wooldridge, discusses free tools being offered by Cure SMA to boost the independence of Spinal Muscular Atrophy (SMA) patients. Also, Forums Director Kevi...
26 Maj 20217min
Remembering to Prioritize Mental Health & Self-Esteem, Post Vaccination Plans and More
SMA News Today’s multimedia associate, Price Wooldridge, reads the column by Alyssa Silva, Life, One Cup At a Time, “I’m Remembering to Prioritize My Mental Health”. DeAnn Runge talks about the hot t...
24 Maj 20216min
Neurofilaments May Not Be Biomarker for Older Patients & The New CDC Mask Recommendations
SMA News Today’s multimedia associate, Price Wooldridge, discusses how neurofilaments may not be a biomarker for older patients with Spinal Muscular Atrophy (SMA) Type 1. Also, DeAnn Runge discusses ...
21 Maj 20218min
Warning of TMA, Rare Blood Disorder, Added to Zolgensma’s Safety Label & Friendships and SMA
SMA News Today’s multimedia associate, Price Wooldridge, discusses adding thrombotic microangiopathy (TMA) to the list of safety concerns for Zolgensma. Also, Forums Director Kevin Schaefer reads a c...
19 Maj 20219min
#82: Interview with Hawken Miller, Journalist with Muscular Dystrophy
In episode 82, host Kevin Schaefer talks with Hawken Miller from Newport Beach, California. Hawken is a features writer for SMA News Today’s parent company, BioNews, as well as a columnist for Muscula...
18 Maj 202136min
Sex And The Number of Copies of The SMN 2 Gene Can Influence Age of Onset for SMA Type 3 Patients
SMA News Today’s multimedia associate, Price Wooldridge, discusses how sex, and the number of copies of the SMN 2 gene influence age of onset for Spinal Muscular Atrophy Type 3 patients. Also, DeAnn ...
17 Maj 202113min
UK NICE Expands Access to Spinraza for SMA Type 3 & The Disappointment of a Jaco Robotic Arm Denial
SMA News Today’s multimedia associate, Price Wooldridge, discusses how UK NICE expands access to Spinraza for Spinal Muscular Atrophy (SMA) Type 3 patients. Also, DeAnn Runge talks about how disappoi...
14 Maj 20216min
German Study Urges Newborn SMA Screening, Citing Better Outcomes & Managing Chaos
SMA News Today’s multimedia associate, Price Wooldridge, discusses a German study which recommends newborn screening for Spinal Muscular Atrophy (SMA), citing better outcomes. Also, Forums Director K...
12 Maj 20219min
