SMA News & Perspectives

SMA News & Perspectives

Daily, digital coverage of the latest SMA news and perspectives.

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Avsnitt(445)

Neurological Alliance Report Calls for Better Treatment, Care for UK Patients

Neurological Alliance Report Calls for Better Treatment, Care for UK Patients

SMA News Today’s multimedia associate, Price Wooldridge, discusses a Neurological Alliance report calling for better treatment and care of U.K. patients living with rare neurological conditions such a...

14 Dec 20207min

Spinraza Linked to Temporary Abnormalities in Immune Cells in 2 SMA Infants

Spinraza Linked to Temporary Abnormalities in Immune Cells in 2 SMA Infants

SMA News Today’s multimedia associate, Price Wooldridge, discusses how Spinraza is linked to temporary abornalities in immune cells in two Spinal Muscular Atrophy (SMA) infants. SMA News Today’s foru...

11 Dec 20209min

Extensive Trial Monitoring Confirms Evrysdi Does Not Damage Vision & The Series "Boy Meets World"

Extensive Trial Monitoring Confirms Evrysdi Does Not Damage Vision & The Series "Boy Meets World"

SMA News Today’s multimedia associate, Price Wooldridge, discusses how extensive trial monitoring confirms Evrysdi does not damage vision in children or adults with Spinal Muscular Atrophy (SMA). SMA...

9 Dec 202011min

Olesoxime Failed to Benefit SMA Type 2 and 3 Patients, Final Trial Data Show

Olesoxime Failed to Benefit SMA Type 2 and 3 Patients, Final Trial Data Show

SMA News Today’s multimedia associate, Price Wooldridge, discusses how olesoxime failed to benefit Spinal Muscular Atrophy (SMA) Type 2 and 3 patients in a final trial. SMA News Today’s forums moder...

7 Dec 20209min

Gene Therapy Given Directly to Spinal Canal Might Be Safer With ‘Silencing’ Step

Gene Therapy Given Directly to Spinal Canal Might Be Safer With ‘Silencing’ Step

SMA News Today’s multimedia associate, Price Wooldridge, discusses how gene therapy, given directly to the spinal canal, might be safer with a “silencing” step. SMA News Today’s forums moderator, DeA...

4 Dec 202010min

Exploring The Intersection of Identity and SMA

Exploring The Intersection of Identity and SMA

Forums Director Kevin Schaefer explores the intersection of identity and SMA in his latest column. To learn more about spinal muscular atrophy, visit our website at www.smanewstoday.com.

2 Dec 20204min

#71: Interview with Kristen Resendez, SMA Parent and Advocate

#71: Interview with Kristen Resendez, SMA Parent and Advocate

In episode 71, host Kevin Schaefer talks with Kristen Resendez from Harlingen, Texas. Kristen’s son, Jack, has SMA, and she is an active member of the SMA community. During this conversation, she talk...

1 Dec 202040min

Spinraza Shown to Preserve Respiratory Muscle Strength in SMA Type 2 Patients

Spinraza Shown to Preserve Respiratory Muscle Strength in SMA Type 2 Patients

SMA News Today’s multimedia associate, Price Wooldridge, discusses how a study has shown Spinraza preserves respiratory muscle strength in Spinal Muscular Atrophy (SMA) Type 2 patients. Are you inter...

30 Nov 20205min

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