SMA News & Perspectives

SMA News & Perspectives

Daily, digital coverage of the latest SMA news and perspectives.

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Avsnitt(445)

Lung Health Declines in Step With Motor Loss in Types 2 and 3, Study Finds

Lung Health Declines in Step With Motor Loss in Types 2 and 3, Study Finds

SMA News Today’s multimedia associate, Price Wooldridge, discusses how lung health declines in step with motor loss in Spinal Muscular Atrophy (SMA) Types 2 and 3. Are you interested in learning more...

26 Nov 20205min

Reflecting On The Insanity of 2020 and The People Who Got Us Through This Year

Reflecting On The Insanity of 2020 and The People Who Got Us Through This Year

Forums Director Kevin Schaefer reflects on the insanity of 2020, and talks about the people who got him through this year. To learn more about spinal muscular atrophy, visit our website at http://ww...

25 Nov 20205min

Spinraza’s Benefits Mild, Transient in Infant With Severe Type 0 SMA

Spinraza’s Benefits Mild, Transient in Infant With Severe Type 0 SMA

SMA News Today’s multimedia associate, Price Wooldridge, discusses the mild, transient benefits of Spinraza treatment in an infant with severe, Type 0, Spinal Muscular Atrophy (SMA). Are you interest...

23 Nov 20205min

Molecule Similar to Evrysdi But Possibly Safe at Higher Doses Identified

Molecule Similar to Evrysdi But Possibly Safe at Higher Doses Identified

SMA News Today’s multimedia associate, Price Wooldridge, discusses a molecule similar to Evrysdi, is possibly safer at higher doses has been identified. Are you interested in learning more about spin...

20 Nov 20207min

How An Urology Appointment Turned Into A Fiasco & Typing Strategies, Vitamin D and Friendsgiving

How An Urology Appointment Turned Into A Fiasco & Typing Strategies, Vitamin D and Friendsgiving

Forums Director Kevin Schaefer talks about how a recent urology appointment turned into a bit of a fiasco. He describes this as an “SMA kind of day.” Also, SMA News Today not only brings you the late...

18 Nov 20206min

#70 - Discussing the JACO Robotic Arm with Ron Borgschulte

#70 - Discussing the JACO Robotic Arm with Ron Borgschulte

In episode 70, host Kevin Schaefer and Michael Morale talk with entrepreneur Ron Borgschulte. Ron is the owner of Partners in Medicine, a company that works with Kinova Robotics to distribute assistiv...

17 Nov 202034min

Muscle MRI Captures Spinraza’s Effects on Tissue Fibers in Type 3 Brothers

Muscle MRI Captures Spinraza’s Effects on Tissue Fibers in Type 3 Brothers

SMA News Today’s multimedia associate, Price Wooldridge, discusses how a muscle MRI captures Spinraza’s effects on tissue fibers in two brothers with Type 3 Spinal Muscular Atrophy (SMA). DeAnn Runge...

16 Nov 20208min

NICE Reviews UK Spinraza Reimbursement for SMA Type 3 Patients Unable to Walk

NICE Reviews UK Spinraza Reimbursement for SMA Type 3 Patients Unable to Walk

SMA News Today’s multimedia associate, Price Wooldridge, discusses England’s National Institute for Health and Care Excellence (NICE) review of reimbursement for SMA Type 3 patients who are unable to ...

13 Nov 20204min

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