The POTScast
Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS patients are eventually diagnosed with MCAS, the first Tuesday of every month we feature a new series called Mast Cell Matters, in which top MCAS practitioners share their experiences in better treating patients. You can learn more by listening to our groundbreaking POTScast anywhere, anytime. Visit our website at www.standinguptopots.org and follow our social media accounts @standinguptopots.

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Avsnitt(250)

E157: POTS Diary with Jessica from North Carolina, a college student who loves to skateboard

E157: POTS Diary with Jessica from North Carolina, a college student who loves to skateboard

Jessica suffered from a brain tumor at birth which caused seizures. It took several years to find a surgeon to remove the tumor. In her teen years, she slowly started to develop POTS symptoms. Despite...

22 Aug 202323min

E156: POTS Diary with Katie, an artist, cosmotologist, and proud mom of 3

E156: POTS Diary with Katie, an artist, cosmotologist, and proud mom of 3

Katie was diagnosed with POTS last year after being diagnosed with EDS in 2014. She tries to stay cheerful, even when not feeling well, to be a good example for her children. She loves painting and cu...

15 Aug 202326min

E155: POTSmom Alison from Nebraska, her daughter developed POTS after concussion and worsened after vaccination

E155: POTSmom Alison from Nebraska, her daughter developed POTS after concussion and worsened after vaccination

Alison's daughter was in college and a competitive horse jumper when she developed POTS. It was manageable at first, but worsened substantially after the COVID vaccine. After a variety of medications ...

8 Aug 202342min

E154: POTS Diaries with Thomas, a high level jiu jitsu athlete who developed POTS at 20

E154: POTS Diaries with Thomas, a high level jiu jitsu athlete who developed POTS at 20

Thomas loves jiu jitsu, skateboarding, and surfing. He developed POTS in college, and really struggled with stamina. Slowly, he has worked both physically and mentally to get himself back in the game....

1 Aug 202337min

E153: POTS Diary with Michael who has long COVID after acute infection in 2020

E153: POTS Diary with Michael who has long COVID after acute infection in 2020

Michael developed Long COVID at the beginning of the pandemic in 2020. He is fortunate to be back to 75% capacity, but recognizes the changes in his lifestyle and broader life as a result of his chron...

25 Juli 202340min

E152: POTS Diary with Autumnizhurr, a content creator and gamer from California

E152: POTS Diary with Autumnizhurr, a content creator and gamer from California

Autumnizhurr has been disabled since college, due to POTS and Wolff Parkinson White Syndrome. She has had several heart ablations to minimize her symptoms, although they caused other problems. She is ...

18 Juli 202338min

E151: POTS Diary with Rebecca from New Zealand, a young nurse who had to move home to deal with symptoms

E151: POTS Diary with Rebecca from New Zealand, a young nurse who had to move home to deal with symptoms

Rebecca was living the dream when POTS hit - just out of college, living in a flat with friends, working as a nurse in the hospital - and forced her to move back home. Slowly, she improved after being...

11 Juli 202319min

E150: Diary with POTSie Lyla and POTSmom Joli

E150: Diary with POTSie Lyla and POTSmom Joli

This episode features a mother and daughter describing how POTS has impacted their daily life. Lyla has had medical issues for most of her life, but a bug bite seemed to really have exacerbated her sy...

4 Juli 202331min

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