The POTScast
Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS patients are eventually diagnosed with MCAS, the first Tuesday of every month we feature a new series called Mast Cell Matters, in which top MCAS practitioners share their experiences in better treating patients. You can learn more by listening to our groundbreaking POTScast anywhere, anytime. Visit our website at www.standinguptopots.org and follow our social media accounts @standinguptopots.

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Avsnitt(250)

E105: Karen from Missouri, a nurse and mom with POTS symptoms from a young age

E105: Karen from Missouri, a nurse and mom with POTS symptoms from a young age

Karen has had POTS symptoms for as long as she can remember, and started passing out at age 15. Unfortunately, it took many doctors and 17 years to get diagnosed. She shares her experience with POTS a...

24 Dec 202237min

E104: Understanding myalgic encephomyelitis/chronic fatigue syndrome through research and personal experience with Dr. Leonard Jason

E104: Understanding myalgic encephomyelitis/chronic fatigue syndrome through research and personal experience with Dr. Leonard Jason

Dr. Leonard Jason, world renowned father of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) research, shares his very personal story with this illness along with what he has learned in his...

20 Dec 202256min

E103: Handling Holiday Stress with Dr. Katie Gorman-Ezell

E103: Handling Holiday Stress with Dr. Katie Gorman-Ezell

The holidays can be stressful, especially when living with an unpredictable illness like POTS. Learn how to ask for what you need and make compromises as you form new holiday traditions! You can dread...

13 Dec 202232min

E102: Lacy from Alabama suffers from gastroparesis, pain, and POTS

E102: Lacy from Alabama suffers from gastroparesis, pain, and POTS

Lacy is a high school student who struggles to remember a time she wasn't sick. Gastroparesis is a big issue for her and she often uses a cane for stability. She's quite upbeat, though, and ready for ...

10 Dec 202219min

E101: Pelvic Congestion Syndrome and POTS with Dr. Steven Smith

E101: Pelvic Congestion Syndrome and POTS with Dr. Steven Smith

Dr. Smith is a retired interventional radiologist who made a discovery in his career treating women with pelvic congestion syndrome (PCS):  His patients with comorbid POTS often said the PCS treatment...

6 Dec 202251min

Christmas Poem 2022 — Why Santa donates to Standing Up to POTS

Christmas Poem 2022 — Why Santa donates to Standing Up to POTS

You can read the transcript for this poem here: https://tinyurl.com/potscastholiday22

3 Dec 20224min

E100: POTS Research both Past and Future with Dr. Satish Raj

E100: POTS Research both Past and Future with Dr. Satish Raj

Dr. Raj is a world renowned POTS physician and researcher who spoke with us about three big POTS research topics: blood volume, autoimmunity, and the norepinephrine transporter. Having done much of th...

29 Nov 202251min

E99: Zoe from Utah, high school senior and aerialist

E99: Zoe from Utah, high school senior and aerialist

Zoe was diagnosed with POTS in 8th grade when she started having dizzy spells and shortness of breath. She has adjusted well, and loves to fly 30 feet above the ground doing ribbon aerial work. Great ...

22 Nov 202227min

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