TSC Talks; Triathlons, Transition and TSC with Reiko Donato, TSC Mom, Ironman Triathlete, Chair TS Alliance GA
Reiko Donato, TSC Mom, Brand Ambassador at Coeur Sports, Chair of the TS Alliance of Atlanta and past TS Alliance Board of Directors Member, walks me thru the timeline from diagnosis of her daughter ...
29 Mars 20191h 7min
TSC Talks; "Vocatus atque non vocatus, Deus aderit.” with Grassroots TSC Advocate & Griffin's Mom, Debora Moritz
Debora Moritz is a Grassroots Advocate, Chair of TS Alliance of Arizona, Member of the Government Relations Committee, and most importantly "just Griffin's mom trying to make things better for him and...
25 Mars 20191h 5min
TSC Talks; Closing the Deal. with TSC Mom, Blogger & TSC Advocate Heather Lens as She Turns No to Yes in Congress & Life
In this episode of TSC Talks, https://www.spreaker.com/episode/17404406 my guest Heather Lens shares from her heart about the lonely day when she first received the Tuberous Sclerosis Complex diagnos...
22 Mars 201954min
TSC Talks; March on Capitol Hill 2019 Mastermind! TS Alliance Manager of Research & Global Affairs, Katie Smith
In this episode, my guest Katie Smith, Manager of Research and Global Affairs at TS Alliance discusses with me in detail, just how she coordinates March on Capitol Hill every year to advocate for fede...
16 Mars 201932min
TSC Talks; Steering the Ship with Passion & Purpose; TS Alliance President & CEO, Kari Luther Rosbeck
Kari Luther Rosbeck, President and CEO of the TS Alliance since 2007, has masterfully steered the ship from the early days where “all we could do was hold the hands of parents as they went thru the st...
16 Mars 201932min
TSC Talks; "Igniting the Flame of Infinite Potential for the Human Spirit" with Jackie Woodside
Jackie Woodside, certified (CPC, LICSW) and a best-selling author, TEDx speaker, radio and television personality and seminar leader who is passionate about expanding the edge of human potential, kind...
9 Mars 201938min
TSC Talks; Everything is Broken. Trauma, TSC & Me. Family Impact, Survival and Hope with 22 yr. Grizzled TSC Vet & Mom, Jill
In this episode, TSC Talks Audio Editor Interviews grizzled TSC veteran, Jill Woodworth on what happened, what she learned, who she met and what's next. How understanding the impact of trauma has been...
1 Mars 201937min
TSC Talks; Episode 30, Riding the Waves of TSC & TAND, an Update with Marlo, TSC Mom & Past Chair of the TS Alliance of New England
Marlo Grolnic, TSC Mom, past chair of the Tuberous Sclerosis Alliance of New England and previous guest on TSC TALKS in September 2018, takes time out of her day to give us an update on how her son's ...
22 Feb 201931min
