TSC Talks; Episode 29, Charting a Course Home. TSC Mom, Heather Little, Describes How She's Managed & Overcome Infinite Challenges with TSC.
From a mismanaged initial TSC diagnosis in her daughter to struggles getting treatment for Infantile Spasms, challenges finding an adequate setting for brain surgery, educational and behavioral issues...
14 Feb 20191h 21min
TSC Talks; Episode 28, Ripple. A Discussion with Danny Van Leeuwen, MPH, RN, CPHQ, Patient and Caregiver Activist, Writer, Speaker & More!
Danny graciously put down one of his many "health hats" and came on the podcast to share his wisdom and deep knowledge of the inner workings of the medical industrial complex, aka healthcare system, f...
8 Feb 201950min
TSC Talks; Episode 27, Invincible Summer! On TSC & Trauma with Body Oriented Psychotherapist & TSC Mom Caroline Ramirez
In this fascinating and inspiring episode, Caroline Ramirez, TSC Mom & Licensed Professional Counselor discusses the impact of different types of trauma, shock trauma & developmental trauma, and how t...
31 Jan 20191h 5min
TSC Talks; Episode 26, The Road Out; Exceptional Challenges on the TSC Path with PhD Psychotherapist & Special Needs Mom, Ginger Sullivan
Ph.D. Psychotherapist, Writer, and Special Needs Mom, Ginger Sullivan, gives us some of her insight, wisdom, and humor gleaned from over 26 years as a therapist in the D.C. area. We discuss the ther...
24 Jan 201935min
TSC Talks; Episode 25; The Epilepsy Experience; from Diagnosis to Acceptance and Activism! With Saaim Ali
Listen to this articulate and inspiring young lady, Saaim Ali, as she gives us a gripping inside look at the experience of having epilepsy. From diagnosis at age 7, thru the current day as a computer...
18 Jan 201936min
TSC Talks; Episode 24, Weed Indeed! Drop Seizures, Cannabis Advocacy and More with Becky Gaunt
Writer, Advocate, TSC Mom, Rebecca Gaunt shares her experience of TSC with her son Connor. She highlights her involvement with Cannabis legislation in GA, after finding it the only treatment adequat...
13 Jan 201949min
TSC Talks; Episode 23, Rebecca Thereault. Joy and Sorrow on the TSC Journey, "Laughing at the Insanity of Life"
In this episode Rebecca shares her challenging experiences and incredible advocacy as a TSC Mom, getting an accurate diagnosis of certain TSC manifestations such as seizures, including infantile spasm...
5 Jan 20191h 16min
TSC Talks; Episode 22, PTSD in Parents and Caregivers with Hillary Savoie, "Listen to us, do not turn the other way"
Hillary Savoie, writer, advocate, consultant, and most importantly, mother of Esmé, a medically fragile, developmentally delayed child, discusses the impact of PTSD on parents, Her recent article in ...
21 Dec 201851min
