TSC TALKS: Episode 13, Mary Comeau - There's Always Hope!
TSC Mom, Mary Comeau shares her nail-biter of an experience with TSC. From potential TSC diagnosis at 20 wks pregnancy, the start of seizures, difficulty with seizure control, keto diet, brain surger...
15 Okt 201831min
TSC TALKS: : Episode 12, Adriana Piltz & Nicky's Garden of Hope
A conversation about Adriana's experience with her son Nicky who is 20 and severely affected by TSC and the incredible project she's started called Nicky’s Gardens of Hope. "The pilot project will bui...
2 Okt 20181h 2min
TSC TALKS: Episode 11: Woody Seagren, Role of a School Psychologist re: TSC
Woody and I discuss his background and experience, the role of a school psychologist, how parents/students affected by TSC can best make use of services of a school psychologist, the use of labels, ad...
2 Okt 201840min
TSC TALKS Episode 10 TSC Mom Renée -A Canadian Perspective w/non verbal son.
Renée and I go in depth into her journey with her son Aaden who is non-verbal with TSC, diagnosis to current day. Renée gives perspective from Canada on managing TSC, from diagnosis, brain surgery to...
26 Sep 20181h 11min
TSC TALKS: Episode 8: TSC Mom Marlo, The Journey Continues
Marlo discusses the weight of a TSC diagnosis and all it's implications. From diagnosis during pregnancy to behaviors and school related issues, seizure frustrations, med management, healthcare profe...
18 Sep 201843min
TSC TALKS: Episode 9: Dorina Leslie, finding True North; TSC & Mental Health
In this episode, I interview Dorina Leslie, mother of Justin Leslie regarding her experiences with TSC diagnosis as well as mental health issues, and finding one's "True North".Become a supporter of t...
18 Sep 201831min
TSC TALKS, Episode 7: Justin Leslie, Hard work and Acceptance, dedicated to the memory of Keith Hall
Justin, 20, URI student. young adult living with TSC. Spoke of his diagnosis, the impact, manifestations, inspiration, influencers, Keith Hall and others. Become a supporter of this podcast: https://w...
11 Sep 201830min
TSC TALKS, Episode 6, MaryEllen, 22 Year Old, Talks About Shared Living
22 year old with tuberous sclerosis complex discusses move to shared livingBecome a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.
8 Apr 201810min
