Untold Stories: Life with a Severe Autoimmune Condition

Untold Stories: Life with a Severe Autoimmune Condition

For people diagnosed with a rare, autoimmune condition like myasthenia gravis (MG) or chronic inflammatory demyelinating polyneuropathy (CIDP), life can change in the blink of an eye. But these conditions affect everyone differently, and each person has a story to tell. Welcome to “Untold Stories: Life with a Severe Autoimmune Condition,” a Ruby Studio from iHeart Media production in partnership with argenx. Host Martine Hackett has real, eye-opening conversations with people living with rare, autoimmune conditions ranging from MG to CIDP. Learn about the hardships of diagnosis and each person’s journey towards wellness. Understand the challenges they continue to overcome as they discover how to live with these conditions and persevere through the tough times. Plus, hear from the family members and friends who stand by them every day and play important roles in their care.

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Avsnitt(41)

Prioritizing Care: Confronting Postpartum with MG

Prioritizing Care: Confronting Postpartum with MG

Nicole is an epidemiologist whose life took an unexpected turn with an MG diagnosis between pregnancies. She had to prioritize how she cared for herself through postpartum depression, while also adapt...

27 Dec 202332min

Untold Stories is Back!

Untold Stories is Back!

Martine Hackett returns with a new season of “Untold Stories: Life with a Severe Autoimmune Condition.” Hear from people forging new paths after diagnosis, and learn how they build community and evolv...

13 Dec 20231min

Accessing Ambition: Professional Success While Living with MG

Accessing Ambition: Professional Success While Living with MG

While myasthenia gravis, or MG, can make navigating everyday tasks more difficult, it does not have to stop people living with MG from pursuing rich personal and professional lives. In this episode, F...

16 Aug 202330min

Body & Spirit: Finding Respite Despite MG

Body & Spirit: Finding Respite Despite MG

Managing life with a rare disease like myasthenia gravis, or MG, can challenge the way you see yourself. Being mindful of emotional wellness can be as important as adapting to physical changes. Today’...

2 Aug 202327min

Leading with Love: Thriving in Marriage While Living with MG

Leading with Love: Thriving in Marriage While Living with MG

Myasthenia gravis, or MG, takes a toll on the lives of those living with the condition, but it also affects their loved ones. As Jessica and her husband Jonathan were preparing to welcome their second...

19 Juli 202329min

Bonus Episode: The Realities of Life with CIDP

Bonus Episode: The Realities of Life with CIDP

In this special bonus episode, we’ll spotlight one of the many rare conditions that deserves more attention and resources. Chronic inflammatory demyelinating polyneuropathy, more commonly known as CID...

12 Juli 202326min

Building Community: Navigating Young Adulthood with MG

Building Community: Navigating Young Adulthood with MG

Myasthenia gravis, or MG, affects people of all ages and races and is most commonly diagnosed later in life. However, for Anaya, her MG symptoms began when she was just 12 years old. Anaya went from b...

5 Juli 202331min

Connecting to Care: The Importance of Self-Advocacy with MG

Connecting to Care: The Importance of Self-Advocacy with MG

Navigating life with myasthenia gravis, or MG, often begins with a long road to diagnosis. For disabled veteran Shawna, the search for answers to her debilitating symptoms took several years. With the...

21 Juni 202327min

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