Untold Stories: Life with a Severe Autoimmune Condition

For people diagnosed with a rare, autoimmune condition like myasthenia gravis (MG) or chronic inflammatory demyelinating polyneuropathy (CIDP), life can change in the blink of an eye. But these conditions affect everyone differently, and each person has a story to tell. Welcome to “Untold Stories: Life with a Severe Autoimmune Condition,” a Ruby Studio from iHeart Media production in partnership with argenx. Host Martine Hackett has real, eye-opening conversations with people living with rare, autoimmune conditions ranging from MG to CIDP. Learn about the hardships of diagnosis and each person’s journey towards wellness. Understand the challenges they continue to overcome as they discover how to live with these conditions and persevere through the tough times. Plus, hear from the family members and friends who stand by them every day and play important roles in their care.

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Avsnitt(43)

Building Community: Navigating Young Adulthood with MG

Myasthenia gravis, or MG, affects people of all ages and races and is most commonly diagnosed later in life. However, for Anaya, her MG symptoms began when she was just 12 years old. Anaya went from b...

5 Juli 202331min

Connecting to Care: The Importance of Self-Advocacy with MG

Navigating life with myasthenia gravis, or MG, often begins with a long road to diagnosis. For disabled veteran Shawna, the search for answers to her debilitating symptoms took several years. With the...

21 Juni 202327min

Welcome to Untold Stories: Life with Myasthenia Gravis

With a rare neuromuscular condition like myasthenia gravis, or MG, everyone’s experience with the disease is unique and often filled with struggles and sacrifices. That’s why argenx has partnered with...

14 Juni 20232min