What it means to be in the Youth Voice Network (Audio only)

What it means to be in the Youth Voice Network (Audio only)

We hear what it’s really like to be part of the Youth Voice Network at Young Epilepsy. Jasmine chats with Milla, who shares their personal story and how being involved has helped them feel more confident and connected.

We also explain what the Youth Voice Network is, how it works, and how young people can get involved to make sure their voices are heard and their experiences shape the future of epilepsy support.

PLEASE NOTE: It is important to understand that epilepsy is a highly individualised condition, and each person’s experience with epilepsy can vary significantly. The information, experience and views shared on this podcast may not reflect those of Young Epilepsy and are not intended to replace professional medical advice, diagnosis, or treatment.

Always consult with a qualified healthcare provider for personalised medical advice and support tailored to your specific needs. If you’re sad, worried or lonely, text the word ‘PURPLE’ to 85258 to start a conversation with Shout. More info: https://www.youngepilepsy.org.uk/shout

Useful links:

Follow us on Socials:

X: https://x.com/youngepilepsy/

Facebook: http://facebook.com/YoungEpilepsy

Instagram: https://www.instagram.com/youngepilepsy/

YouTube: https://www.youtube.com/user/youngepilepsy

LinkedIn: https://www.linkedin.com/company/young-epilepsy/

TikTok: https://www.tiktok.com/@youngepilepsy/

Contact: communications@youngepilepsy.org.uk

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Jaksot(14)

Epilepsy and Us: Sibling Stories

Epilepsy and Us: Sibling Stories

In this episode, Ree is joined by Milla, a young person with epilepsy, and her brother Harry to talk honestly about sibling experiences. They share what it’s like growing up with epilepsy in the famil...

13 Touko 1h 12min

Introduction to: Harder to Manage Epilepsy

Introduction to: Harder to Manage Epilepsy

In this episode, we introduce Harder to Manage Epilepsy, a new podcast series from Young Epilepsy exploring the challenges faced by children, young people and families living with epilepsies that don’...

22 Huhti 44min

Can I drive with epilepsy?

Can I drive with epilepsy?

In this episode, we talk about epilepsy and driving, and what it means for young people. Host Ellie is joined by Chris McCarthy and Elina from Young Epilepsy’s Youth Voice Network to explore the reali...

1 Huhti 45min

What I wish I knew when I was diagnosed (Audio only)

What I wish I knew when I was diagnosed (Audio only)

We explore what young people wish they’d known when they were first diagnosed with epilepsy. Host Olivia sits down with Jasmine and Renell from the Youth Voice Network to share honest stories about th...

3 Joulu 202523min

Diagnosis and Emerging Technologies (Audio only)

Diagnosis and Emerging Technologies (Audio only)

We dive into the emotional journey of getting an epilepsy diagnosis. Host Kirsten McHale chats with Professor Mark Richardson, Dr Colin Dunkley, and Spencer from the Youth Voice Network. They talk abo...

19 Marras 20251h 17min

A parent's journey with childhood epilepsy - Sarah and Lexi (Audio only)

A parent's journey with childhood epilepsy - Sarah and Lexi (Audio only)

This episode explores the emotional journey of getting an epilepsy diagnosis for children and young people. Host Kirsten McHale speaks with Sarah, who shares her personal experience as a parent naviga...

5 Marras 202532min

Hear Her Voice – Exploring the impact of epilepsy on women and girls (Audio only)

Hear Her Voice – Exploring the impact of epilepsy on women and girls (Audio only)

In our first LIVE episode, renowned broadcaster, Edith Bowman hosts a powerful panel discussion with Netflix and Hollyoaks actor Ellie Henry, Fashion PR Hum Fleming, and student Mariam Hussain who sha...

14 Loka 20251h 31min

Joe's seizures (Audio only)

Joe's seizures (Audio only)

In this episode, we break down what seizures are and what they can look like. With help from healthcare professionals and real-life stories, we explain the different types of seizures in a way that’s ...

8 Loka 202544min

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