Let’s talk about epilepsy24 Syys 2025

You’re Not Alone: Finding Support with Epilepsy (Audio only)

We talk about what it’s really like to be a young person with epilepsy. We look at why some people feel alone, how to find support, and how building a community can help. We also talk about bullying, mental health, and how to get help when you need it.

In this episode:

Feeling Alone: Why so many young people with epilepsy feel isolated, and what can help.
Building Community: How making friends and joining groups can make life better.
Online Support: How you can get help and join in, wherever you live.
Real Stories: Young people share how meeting others changed their lives.
Bullying and Ignorance: Why it happens, and what we can do about it.
Mental Health: Why it matters, and where to find support.
Hope: You’re not alone—there’s always someone who understands.

NOTICE:

Epilepsy is different for everyone. What works for one person might not work for another. The stories and advice in this podcast are not medical advice. Always talk to a doctor or nurse for help that’s right for you.

If you’re feeling sad, worried or lonely, text the word ‘PURPLE’ to 85258 to start a conversation with Shout. More info: https://www.youngepilepsy.org.uk/shout

Useful Links:

Young Epilepsy: https://www.youngepilepsy.org.uk/
Youth Support Services: https://www.youngepilepsy.org.uk/what-we-do/support-inclusion/youth-support
Info about epilepsy: https://www.youngepilepsy.org.uk/about-epilepsy

Social Media:

X: https://x.com/youngepilepsy/
Facebook: http://facebook.com/YoungEpilepsy
Instagram: https://www.instagram.com/youngepilepsy/
YouTube: https://www.youtube.com/user/youngepilepsy
LinkedIn: https://www.linkedin.com/company/young-epilepsy/
TikTok: https://www.tiktok.com/@youngepilepsy/

Contact: communications@youngepilepsy.org.uk

Tämä jakso on lisätty Podme-palveluun avoimen RSS-syötteen kautta eikä se ole Podmen omaa tuotantoa. Siksi jakso saattaa sisältää mainontaa.

Jaksot(21)

Keto and epilepsy: More than just a diet | Harder to manage epilepsy

This episode focuses on the ketogenic diet as a treatment for epilepsy, particularly drug-resistant epilepsy. We explore what medical ketogenic diet therapy is, how it works and what starting and foll...

21 Loka 1h 19min

Wait, What Was I Saying? | Effects on Memory

How does epilepsy affect memory, and what can help when you're constantly forgetting things? In this episode, host Scarlett is joined by former Youth Voice Network member Annie and a young person liv...

30 Syys 31min

Harder to manage epilepsy: moving into adult healthcare

In this episode of the Young Epilepsy Podcast, we explore the transition from children’s to adult services for young people with harder-to-manage epilepsy. Host Joe Paternoster, Assistant Psychologist...

9 Syys 50min

Venting

What really frustrates young people about living with epilepsy? In this honest and unfiltered episode of Let's Talk About Epilepsy, host Cam is joined by members of Young Epilepsy's Youth Voice Netwo...

19 Elo 10s

Harder to Manage Epilepsy: Could VNS Therapy Help?

In this episode of the Young Epilepsy Podcast, we explore Vagus Nerve Stimulation (VNS) therapy and how it can help children and young people with harder to manage epilepsy. Host Kirsten McHale, Head ...

22 Heinä 32min

Hear Her Voice 2026 – Exploring the impact of epilepsy on women and girls

PLEASE NOTE: Epilepsy is a highly individualised condition, and each person’s experience can vary significantly. The information, experiences, and views shared in this podcast may not reflect those of...

1 Heinä 1h 22min

Brain Surgery: Harder to Manage Epilepsy

In this episode, host Dr Lara Carr is joined by Professor Helen Cross and Tanisha from the Youth Voice Network to talk about epilepsy brain surgery. They explain when surgery might be considered, what...

3 Kesä 25min

Epilepsy and Us: Sibling Stories

In this episode, Ree is joined by Milla, a young person with epilepsy, and her brother Harry to talk honestly about sibling experiences. They share what it’s like growing up with epilepsy in the famil...

13 Touko 1h 12min