IVIG, Rage, and how music heals. Dr Patrick Whelan shares insights PANS PANDAS
Dr Whelan is a rheumatologist from UCLA in California. He describes his discipline as almost the last port of call for many suffering from PANS/PANDAS but describes how his specialist understanding of...
18 Touko 56min
Treating the Whole Child: PANS/PANDAS, Neuroinflammation & Hope with Dr. Leila Mason
((Before I talk about this episode, I have a favour! Please scroll down - there is a survey link below - 20 minutes of your time could shape the future of therapy for this illness 💛 Thanks))This week...
4 Touko 56min
Evie Meg talks about PANS/PANDAS, encephalitis, dystonia, OCD, Bartonella and Lyme Disease
Evie Meg is the most well known advocate for immune mediated neuropsychiatric disorders with more than 15 million followers on TikTok (which I worked out is twice as many as Coldplay, people!) and 1m ...
12 Huhti 56min
Why Children With PANS Struggle With Everyday Life | Occupational Therapy Explained
Michelle Newby thinks that Occupational Therapy should be the fourth pillar of PANS/PANDAS treatment, after controlling inflammation and infection and psychiatric and psychological help. She works clo...
28 Helmi 46min
Living With PANS/PANDAS and Fighting Back | Kirk Lord’s Story
"I want every single kid, every single teen, every single young adult, every single adult with PANS/PANDAS to realise what they are capable of because they are capable of so much more than their disor...
20 Helmi 46min
Recovering From PANS/PANDAS: A Teenager’s Story of Hope
In this episode of PansPandas Stories, host Lucy McDonald interviews Freya Shacklock, a 19-year-old who shares her inspiring journey of recovery from PANS-PANDAS, a condition that caused her severe me...
5 Joulu 202550min
PANS Flares, Medication and Recovery | Dr Kiki Chang
It has been a while since the last PANS PANDAS Stories and our return is marked by an interesting chat with Dr Kiki Chang. He has a long PP pedigree and now works privately in the States where he has ...
17 Marras 202549min
