Coping, Denial or Both
I AM MADELINE26 Elo 2023

Coping, Denial or Both

Where I attempt to puzzle out explaining some of my coping strategies. Also ombudsman update plus an article that includes me should be coming out soon update. I talk about MS and ME briefly in this ep so here are some links about that: viral origins of myalgic encephalomyelitis, some of the history of its abdication, it's relationships to MS and AIDS and particularly to Epstein-Barr which was the virus that got me https://journals.plos.org/plospathogens/article?id=10.1371/journal.ppat.1011523#ppat.1011523.ref025 And this one draws distinct parallels between MS and ME and shows the seriousness and deadly nature of myalgic encephalomyelitis- Myalgic encephalomyelitis/chronic fatigue syndrome and encephalomyelitis disseminata/multiple sclerosis show remarkable levels of similarity in phenomenology and neuroimmune characteristics | BMC Medicine | Full Text https://bmcmedicine.biomedcentral.com/articles/10.1186/1741-7015-11-205 More info on MS and Epstein-Barr Clonally expanded B cells in multiple sclerosis bind EBV EBNA1 and GlialCAM https://www.nature.com/articles/s41586-022-04432-7 Gfm for those who want it https://gofund.me/cff39173 (Also bear with me guys as I try to find the perfect location for the microphone. I have to play with levels post recording when it turned out it was too close so I hope that's okay. I don't know have the energy or brain power to rerecord. Le sigh. It's hard to have the sound quality at the level that I want it to be while hanging off a cliff by a branch like a cartoon animal trying to be a magical Ted talk to drs, politicians, bureaucrats +now ombudsman, etc while also trying to navigate scarcity and illness. So I appreciate your forbearance💗. )

Jaksot(144)

My life, the dramedy

My life, the dramedy

documenting yet another instance of when I go out of my way to double check on the some sort of medical provider and get told interact information which ultimately causes me to hemorrhage energy

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Walk softly and carry a big stick

Walk softly and carry a big stick

where I'm thinking I'm going to have to do different strategy in really start getting a public officials to understand that if they are thinking that stonewalling me and waiting for me to die will mak...

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Terrible Tightrope

Terrible Tightrope

where I talk about the push me pull you of my mitochondria requiring rest and any hope of survival by getting governmental change or enough GoFundMe to stay alive being about me doing advocacy and on ...

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Easter musings

Easter musings

it's Easter morning, and I talk about some of the good things that have happened but also as per usual document the obstacles that are ever present I talk about this housekeeping GoFundMe a friend set...

5 Huhti 34min

under pressure

under pressure

I was trying to figure out what to call this and I think that David Bowie Queen song under pressure pretty much describes it I think. So I'm continuing to try to document the insanity of the measure o...

24 Maalis 38min

Sick Times republish of my op-ed!

Sick Times republish of my op-ed!

A quick update as the sick times have republished my op-ed. I'm a bit addle brained so you're not getting a lot much in the way of intelligence but it does document some of the brain fog issues Sick t...

20 Maalis 6min

Light In Darkness

Light In Darkness

today I don't just document the grinding difficulty but my memory banks pulled up some really nice light and darkness times from when I was little and I also talk about some really nice things from so...

18 Maalis 20min

Leadership And Power Musings

Leadership And Power Musings

where I talk about how I feel about My power and the leadership roles I have been in and the leadership roles I may be in in the near future depending on how the email campaign goes speaking of which ...

16 Maalis 22min

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