Coping, Denial or Both
I AM MADELINE26 Elo 2023

Coping, Denial or Both

Where I attempt to puzzle out explaining some of my coping strategies. Also ombudsman update plus an article that includes me should be coming out soon update. I talk about MS and ME briefly in this ep so here are some links about that: viral origins of myalgic encephalomyelitis, some of the history of its abdication, it's relationships to MS and AIDS and particularly to Epstein-Barr which was the virus that got me https://journals.plos.org/plospathogens/article?id=10.1371/journal.ppat.1011523#ppat.1011523.ref025 And this one draws distinct parallels between MS and ME and shows the seriousness and deadly nature of myalgic encephalomyelitis- Myalgic encephalomyelitis/chronic fatigue syndrome and encephalomyelitis disseminata/multiple sclerosis show remarkable levels of similarity in phenomenology and neuroimmune characteristics | BMC Medicine | Full Text https://bmcmedicine.biomedcentral.com/articles/10.1186/1741-7015-11-205 More info on MS and Epstein-Barr Clonally expanded B cells in multiple sclerosis bind EBV EBNA1 and GlialCAM https://www.nature.com/articles/s41586-022-04432-7 Gfm for those who want it https://gofund.me/cff39173 (Also bear with me guys as I try to find the perfect location for the microphone. I have to play with levels post recording when it turned out it was too close so I hope that's okay. I don't know have the energy or brain power to rerecord. Le sigh. It's hard to have the sound quality at the level that I want it to be while hanging off a cliff by a branch like a cartoon animal trying to be a magical Ted talk to drs, politicians, bureaucrats +now ombudsman, etc while also trying to navigate scarcity and illness. So I appreciate your forbearance💗. )

Jaksot(143)

Energy Overdrawn

Energy Overdrawn

episode done at a hospital treatment. kind of a recording in the wild lol Links I mentioned Petition https://bit.ly/Marcia_petitionCanary opted December 19th 2025 https://www.thecanary.co/opinion/2025...

9 Tammi 9min

Jan 1, 2 AM, 2026

Jan 1, 2 AM, 2026

photo is of first blossoms that I saw yesterday! That usually lifts my spirits Because I love spring. But it's the wee hours in the morning where pensive and melancholy seem to be emotions that I'm ex...

1 Tammi 17min

pt 2 my op-ed Canary UK

pt 2 my op-ed Canary UK

My op-ed is out! https://www.thecanary.co/opinion/2025/12/19/me-void/ (Linkbio)If you could share the op-ed everywhere you can that would be amazing. Posts I've made for easy sharing Insta https://www...

20 Joulu 20252min

My CanaryUK op-ed is out

My CanaryUK op-ed is out

My op-ed is out! https://www.thecanary.co/opinion/2025/12/19/me-void/ (Linkbio)If you could share the op-ed everywhere you can that would be amazing. Posts I've made for easy sharing Insta https://www...

19 Joulu 20252min

Merry Merry

Merry Merry

where I talk about pushing my energy envelope so that I can have some good experiences in the face of all the hardship I'm going through. yeah it's making my pain and exhaustion dramatically worse but...

18 Joulu 202514min

The Fine Art Of Distraction

The Fine Art Of Distraction

where I talk about The fine art of distraction, a particularly bad episode of pain, the perils of not having housekeeping supports, fear around running out of the GoFundMe money that I use for treatme...

17 Joulu 202510min

Sinterklaas

Sinterklaas

where I talk about an op-ed I'm in the final edit stages (Yes I'll post it the minute it's up in a new episode) And I talk about Sinterklaas, celebration of the name day of St Nicholas, December 6th. ...

5 Joulu 202546min

preparation is the better part of valor

preparation is the better part of valor

to borrow part of a quote and replace discretion with preparation, hence preparation is the better part of valor when it comes to myalgic encephalomyelitis deterioration. So today I talk about some of...

1 Joulu 202524min

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