Crisis On The Water With Sean
My Myasthenia7 Kesä 2022

Crisis On The Water With Sean

On Today's episode, we have the privilege of interviewing Sean on his remarkable story of getting diagnosed with Myasthenia Gravis. While his path wasn't ideal, Sean is on the road to recovery and is enjoying the beginning stages of remission! Find Sean on Reddit as /u/SeanRok on the subreddit /r/MyastheniaGravis. If you would like to be interviewed for the podcast please send an email to MyMyastheniaPod@gmail.com and we can discuss having you on the show! Don't forget June is Myasthenia Gravis Awareness Month. To find out more, visit the Myasthenia Gravis Foundation here: https://myasthenia.org/Make-an-Impact/Turn-Awareness-into-Action

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Jaksot(12)

What happens to your body in the heat?

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Sheila’s MG Story

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On todays episode, we discuss Sheila’s process of discovering she had MG, how she passed her antibodies to her newborn daughter, and more! Check out Sheila's band here! https://sheiladeemusic.com/ Sp...

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What to Expect with IVIG

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Today's episode of My Myasthenia is all about IVIG – what it is, what to expect from your first injection, and more. We'll be discussing the basics of IVIG and how it can help those with myasthenia gr...

3 Joulu 202234min

Learning to Cope

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On today's episode, we learn about healthy and unhealthy ways to cope with stressful situations, and how to identify ways to improve those skills.  Thank you to everyone who has stuck around and wait...

24 Loka 202232min

My Thymectomy Experience

My Thymectomy Experience

On today's episode, I will be discussing my experience of getting a Thymectomy to remove my Thymus and Thymoma. If you are worried about having this surgery done, hopefully hearing my story in detail ...

15 Heinä 202250min

Dealing with the Heat - MG Tips #2

Dealing with the Heat - MG Tips #2

On Today's episode, we cover the common topic of dealing with the summer heat. Tune in to hear the most common Tips and Tricks from the MG community on staying safe - and comfortable - during the hott...

6 Heinä 202231min

The Wonderful World of Mestinon

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Join us as we take a ride on the "Royalty Free" version of the Magic School Bus and dive deep into the human body to explore The Wonderful World of Mestinon, and see how it works at the cellular level...

29 Kesä 202231min

Discussing Therapy With Michelle

Discussing Therapy With Michelle

On Today's Episode, we get to interview Michelle, a Clinical Therapist who also suffers from MG. She shares some helpful information on coping with a Chronic Illness, so be sure to listen to the whole...

21 Kesä 202252min

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