Arthritis Storytelling Hour - 13 Patient Stories in 90 Minutes
Arthritis Life12 Tammi 2021

Arthritis Storytelling Hour - 13 Patient Stories in 90 Minutes

In December 2020, Arthritis Life hosted an “Arthritis Storytelling Hour” where thirteen patients shared vivid tales from their lives.

Listen and learn about how difficult the diagnosis process is for some, how people with rheumatoid arthritis and ankylosing spondylitis learned to advocate for themselves, how to navigate work life with your condition, what it’s like to be a “spoonie mom,” the importance of mindset, acceptance and self-care, and more!

Video details:

Topic: basics of life with RA, diagnosis stories, how diagnosis led to career

  • 1:28 - Chloe Umpleby JIA (Juvenile Idiopathic Arthritis) journey
  • 6:21 - Kia Peters: diagnosis of RA (rheumatoid arthritis) during graduate school
  • 11:00 - Sammantha Dorazio: diagnosis led to career as Nurse Practitioner
  • 14:20-Paulina Burzynsk: how RA helped her take better care of your body

Topic: Advocacy / learning to speak up

  • 24:30 - Jed Finley example of how he learned how to advocate for himself in the context of medical appointments for his ankylosing spondylitis
  • 30:00 - Mimi Cross - how she learned that if something makes you uncomfortable you need to speak up even if that feels awkward

RA’s effect on work

  • 36:13 - Sarah Dillingham - how she became comfortable talking about RA at work
  • 42:30 - Effie Koliopoulos - how RA led her to her passion for writing

RA’s and family

  • 46:20 - Ushma Sampat - how RA affects family relationships and life partnership / marriage
  • 54:50 - Jes Hosjan How AS affects her experience as a mom and how she learned to advocate as a “spoonie mom!”

Humor and Mindset

  • 1:03:02 - Cristina Montoya - Humorous take on life with RA
  • 1:10:17 - Krista - Her experience chasing a past life to be the same “pre diagnosis” and how she learned to embrace the present
  • 1:17:44 - Cheryl Crow - My journey to acceptance of discomfort and uncertainty in life, how ACT (acceptance and commitment therapy) and my two therapists helped me!

Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Links to speaker pages and websites:

This video is brought to you by the Rheumatoid Arthritis Roadmap, an intensive online education and support program Cheryl Crow created to empower people with tools to confidently manage their social, emotional and physical lives with rheumatoid arthritis.


Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Tämä jakso on lisätty Podme-palveluun avoimen RSS-syötteen kautta eikä se ole Podmen omaa tuotantoa. Siksi jakso saattaa sisältää mainontaa.

Jaksot(217)

Becoming Immune Confident with Sjogren’s & MCAS, with Dr. Kara Wada

Becoming Immune Confident with Sjogren’s & MCAS, with Dr. Kara Wada

In this empowering conversation, Cheryl  and Dr. Kara Wada explore what it means to take charge of your health with conditions like Sjögren’s syndrome and mast cell activation syndrome (MCAS). Dr Kara...

18 Kesä 1h 7min

Exploring the Intersection of Cancer and Rheumatoid Arthritis, with Dr. Singh

Exploring the Intersection of Cancer and Rheumatoid Arthritis, with Dr. Singh

They also explore exciting new therapies like CAR T-cell treatment, along with practical advice on self-advocacy, building the right healthcare team, and what it truly means to thrive while living wit...

4 Kesä 44min

Rheumer Has It:  Role of the Multidisciplinary Team in Rheumatic Disease: OT, PT, Counseling and More!

Rheumer Has It: Role of the Multidisciplinary Team in Rheumatic Disease: OT, PT, Counseling and More!

They explain how occupational therapists, physical therapists, mental health professionals, pharmacists, and others can help you manage fatigue, pain, anxiety, daily routines, and life after diagnosis...

21 Touko 29min

Pregnancy, Postpartum & Parenting with Rheumatoid Arthritis, with Mariah Leach

Pregnancy, Postpartum & Parenting with Rheumatoid Arthritis, with Mariah Leach

Cheryl and Mariah discuss everything from medication decisions during pregnancy to adapting family life, traveling with chronic illness, managing expectations, and finding “micro moments” of joy along...

7 Touko 43min

Body Weather: Making Sense of Chronic Illness in an Unpredictable Body

Body Weather: Making Sense of Chronic Illness in an Unpredictable Body

She shares her complex diagnostic journey across multiple autoimmune and inflammatory conditions, highlighting the uncertainty and overlap many patients experience. Cheryl and Lorraine discuss shiftin...

21 Huhti 1h 4min

Introducing New Rheum to THRIVE Facilitators Gittel Aguilar & Eileen!

Introducing New Rheum to THRIVE Facilitators Gittel Aguilar & Eileen!

Eileen and Gittel talk about why they’re passionate about leading support spaces, what those groups are really like (spoiler: welcoming, not intimidating), and how connection can make a huge differenc...

15 Huhti 46min

Making Movement Accessible with Inflammatory Arthritis, with Jamie Boder

Making Movement Accessible with Inflammatory Arthritis, with Jamie Boder

The conversation also dives into the emotional side of chronic illness, including fear of movement, the importance of interoception (body awareness), and how to avoid the boom–bust cycle of overdoing ...

2 Huhti 59min

Rheumer Has It:  Myths and Misconceptions About Arthritis Research: What Patients Should Know

Rheumer Has It: Myths and Misconceptions About Arthritis Research: What Patients Should Know

Together, we walk through how to find reputable research, what “peer-reviewed” really means, and why one exciting study doesn’t equal a proven treatment. Dr. Li also explains key concepts like plain l...

26 Maalis 34min

Suosittua kategoriassa Koulutus

rss-murhan-anatomia
psykopodiaa-podcast
adhd-podi
dear-ladies
rss-liian-kuuma-peruna
rss-hereilla
rahapuhetta
voi-hyvin-meditaatiot-2
rss-niinku-asia-on
kesken
rss-valo-minussa-2
rss-rahamania
psykologia
rss-uskonto-on-tylsaa
rss-duodecim-lehti
rss-narsisti
rss-arkea-ja-aurinkoa-podcast-espanjasta
rss-ihana-elamani
aamupore
rss-sisun-alkemia