Living With PSC Episode 22: The Importance of the PSC Partners Registry, A Discussion with  Registry Director Rachel Gomel
Living With PSC16 Maalis 2021

Living With PSC Episode 22: The Importance of the PSC Partners Registry, A Discussion with Registry Director Rachel Gomel

PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has it all!

In episode 22, Host Niall McKay talks with PSC Partners Patient Registry Director Rachel Gomel about the value of the PSC Patient Registry and the importance of this database in the search for treatments and a cure for PSC. "The collected information helps in our understanding of where our rare patients are located. The registry also shows us who could be a match for a specific clinical trial, and how aggregated data collected on patients can show disease trends and unmet needs," says Gomel. "The privacy of the patients is of utmost importance to PSC Partners," she adds.

Jaksot(47)

Harriet Medeley talks about Outpatient her new play about PSC

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The link between mental wellbeing and physical recovery after liver transplant.

The link between mental wellbeing and physical recovery after liver transplant.

Host Niall McKay speaks with Dr. Sharon Millen, a health psychologist at Queen's University Hospital, Belfast in Northern Ireland. Dr. Millen, a two-time liver transplant recipient, completed her PhD ...

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2024 PSC Partners Annual Conference, Cutting-Edge PSC Research, and the Search for a Cause: A Conversation with Dr. Tom Karlsen

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In episode 45 of the Living with PSC Podcast, Host Niall McKay talks with Tom Karlsen, MD, PhD, Co-Chair of the 2024 PSC Partners 20th Anniversary Annual Conference, and Clinical Specialist in Interna...

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Early Detection of Cholangiocarcinoma:  A Conversation with Dr. Jesse Kirkpatrick

Early Detection of Cholangiocarcinoma: A Conversation with Dr. Jesse Kirkpatrick

PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing chol...

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In-Depth Look Inside the 2023 PSC Partners Conference: A Conversation with Medical Science Liaison Joanne Hatchett

In-Depth Look Inside the 2023 PSC Partners Conference: A Conversation with Medical Science Liaison Joanne Hatchett

PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing chol...

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Rejection and PSC Recurrence After Liver Transplant:  A Conversation with Dr. David Goldberg

Rejection and PSC Recurrence After Liver Transplant: A Conversation with Dr. David Goldberg

PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing chol...

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Meet Dr. Stephen Rossi:  A Conversation with the PSC Partners Chief Scientific Officer

Meet Dr. Stephen Rossi: A Conversation with the PSC Partners Chief Scientific Officer

PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing chol...

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Going Through a Liver Transplant: A Conversation Between a Husband & Wife

Going Through a Liver Transplant: A Conversation Between a Husband & Wife

PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing chol...

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