The Future of PSC Research and PSC Partners Research Priorities: An Interview with PSC Partners Former Director of Research Strategy Dr. Ruth-Anne Pai
Living With PSC17 Tammi 2022

The Future of PSC Research and PSC Partners Research Priorities: An Interview with PSC Partners Former Director of Research Strategy Dr. Ruth-Anne Pai

PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has it all!

In episode 29, Host Niall McKay talks with Dr. Ruth-Anne Pai, PhD, PSC Partners Former Director of Research Strategy. They discuss the future of PSC research, the importance of patient voice and participation, PSC Partners research priorities, and more. "We, as a community, with the patient voice, are prioritizing the most important questions," says Pai, adding that three primary areas of focus have been identified, so far. "Having a Patient-Reported Outcome Measure (PROM), surrogate endpoints, and an external control arm (will), we hope, accelerate and improve the rate of success for clinical trials."

Jaksot(47)

Harriet Medeley talks about Outpatient her new play about PSC

Harriet Medeley talks about Outpatient her new play about PSC

Niall McKay talks to Harriet Medeley about her diagnosis of Primary Sclerosing Cholangitis (PSC) and how it inspired her to write Outpatient, an award-winning comedy play which opened in London this m...

26 Touko 202527min

The link between mental wellbeing and physical recovery after liver transplant.

The link between mental wellbeing and physical recovery after liver transplant.

Host Niall McKay speaks with Dr. Sharon Millen, a health psychologist at Queen's University Hospital, Belfast in Northern Ireland. Dr. Millen, a two-time liver transplant recipient, completed her PhD ...

28 Huhti 202531min

2024 PSC Partners Annual Conference, Cutting-Edge PSC Research, and the Search for a Cause: A Conversation with Dr. Tom Karlsen

2024 PSC Partners Annual Conference, Cutting-Edge PSC Research, and the Search for a Cause: A Conversation with Dr. Tom Karlsen

In episode 45 of the Living with PSC Podcast, Host Niall McKay talks with Tom Karlsen, MD, PhD, Co-Chair of the 2024 PSC Partners 20th Anniversary Annual Conference, and Clinical Specialist in Interna...

14 Elo 202441min

Early Detection of Cholangiocarcinoma:  A Conversation with Dr. Jesse Kirkpatrick

Early Detection of Cholangiocarcinoma: A Conversation with Dr. Jesse Kirkpatrick

PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing chol...

16 Touko 202433min

In-Depth Look Inside the 2023 PSC Partners Conference: A Conversation with Medical Science Liaison Joanne Hatchett

In-Depth Look Inside the 2023 PSC Partners Conference: A Conversation with Medical Science Liaison Joanne Hatchett

PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing chol...

17 Maalis 202420min

Rejection and PSC Recurrence After Liver Transplant:  A Conversation with Dr. David Goldberg

Rejection and PSC Recurrence After Liver Transplant: A Conversation with Dr. David Goldberg

PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing chol...

22 Helmi 202431min

Meet Dr. Stephen Rossi:  A Conversation with the PSC Partners Chief Scientific Officer

Meet Dr. Stephen Rossi: A Conversation with the PSC Partners Chief Scientific Officer

PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing chol...

16 Tammi 202437min

Going Through a Liver Transplant: A Conversation Between a Husband & Wife

Going Through a Liver Transplant: A Conversation Between a Husband & Wife

PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing chol...

20 Syys 202341min

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