Episode 55: Minority Inclusion & MS -- We are illmatic with Victoria Reese
RealTalk MS2 Loka 2018

Episode 55: Minority Inclusion & MS -- We are illmatic with Victoria Reese

A lot of people visit the RealTalk MS website to listen to each podcast episode. I wanted to make that easier to do, so last week I released the RealTalk MS app for iOS or Android smartphones and tablets. The app will always have the latest episode of RealTalk MS cued up and ready for you to listen to, and it also lets me share all kinds of bonus content with you. Head to the Apple App Store to download the iOS version of the app, or the Google Play Store to download the Android version of the app. It's the best way to stay connected to the podcast! And speaking of staying connected to the podcast, next week, the European Committee for Treatment and Research in Multiple Sclerosis is hosting the ECTRIMS 2018 Congress in Berlin, Germany. It's the largest MS conference in the world. I'll be there, and you can look forward to special episodes of RealTalk MS, next Wednesday, Thursday, and Friday, October 10th, 11th, and 12th! You'll get the news, hear the interviews, and you'll be the first to get the research updates and announcements as they're being made at the largest MS conference in the world. And if you have the RealTalk MS app, you might even find some exclusive content from ECTRIMS that will only be available in the app. So next week, connect with the RealTalk MS podcast, and I'll do my best to connect you to ECTRIMS 2018.

My guest on this week's podcast is Victoria Reese, the founder of the We Are Illmatic campaign. Earlier this year, I had an opportunity to talk with Victoria about the concept of inclusion in the MS community, and how the We Are Illmatic campaign is out to change the face of MS.

We're also talking about a research review that reminds us how very bad smoking is for people living with MS, and the results of a 10-year study in the UK about the cost-effectiveness and clinical effectiveness of 4 MS disease modifying therapies. We'll give you the details behind the congressional funding for the National Neurological Conditions Surveillance System in the U.S. And if you're African-American and living with MS, we'll tell you about how you can participate in an MS genetics study being conducted by UCSF.

We have a lot to talk about! Are you ready for RealTalk MS?

___________

Download the RealTalk MS App! 1:26

RealTalk MS Will Be in Berlin for ECTRIMS 2018 2:27

MS Society UK Publishes Research Review on Smoking & MS 4:10

10-Year Study in UK Shows MS DMT Effective for RRMS 6:25

U.S. Congress Funds National Neurological Surveillance System 9:18

UCSF Recruiting African-Americans for MS Genetic Study 13:09

Interview with Victoria Reese 16:56

___________

LINKS
If your podcast app doesn't show these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Link Between Smoking & MS Clearer Than Ever

Helpline@mssociety.org.uk (For questions about smoking & MS)

Assessing the Long-Term Effectiveness of Interferon-beta and Glatiramer Acetate in Multiple Sclerosis: Final 10-Year Results from the UK Multiple Sclerosis Risk-Sharing Scheme

Patient Groups Applaud Spending Bill That Funds Important Neuro Data System

UCSF African-American MS Genetic Study Intake Survey

msdb@ucsf.edu (For questions about UCSF African-American MS Genetic Study)

We Are Illmatic

Give RealTalk MS a Rating & Review

___________

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 55
Hosted By: Jon Strum
Guests: Victoria Reese

Tags: MS, MultipleSclerosis, weareillmatic, ECTRIMS2018, MSSocietyUK, MSActivist, UCSF, RealTalkMS

Jaksot(505)

Episode 435: Revisiting ECTRIMS 2025 with Dr. Bruce Bebo and Kristine Werner Ozug

Episode 435: Revisiting ECTRIMS 2025 with Dr. Bruce Bebo and Kristine Werner Ozug

We're closing out the year by revisiting the most listened-to episode of RealTalk MS in 2025. And it shouldn't come as a major surprise that this year's most listened-to episode was our review of the ...

29 Joulu 202524min

Episode 434: Revisiting Managing Menopause While You're Managing MS with Dr. Riley Bove

Episode 434: Revisiting Managing Menopause While You're Managing MS with Dr. Riley Bove

The holiday season gives me the opportunity to indulge in what's become a RealTalk MS tradition. I reserve the last two episodes in December to revisit the most popular conversations that I've had ove...

22 Joulu 202521min

Episode 433: Our Most Important Conversations of 2025 with Dr. John Corboy, Dr. Mikael Simons, Dr. John DeLuca, and Dr. Stehen Krieger

Episode 433: Our Most Important Conversations of 2025 with Dr. John Corboy, Dr. Mikael Simons, Dr. John DeLuca, and Dr. Stehen Krieger

As the year draws to a close, we wanted to share some of the most compelling conversations we've had over the past 12 months. And rather than make my own picks, we went through the hundreds of emails ...

15 Joulu 202543min

Special Episode: Guiding the Future of MS Care: MS21 Consensus Recommendations for Improving MS Care to Relieve the Burden of Disease

Special Episode: Guiding the Future of MS Care: MS21 Consensus Recommendations for Improving MS Care to Relieve the Burden of Disease

This special episode of RealTalk MS is sponsored by EMD Serono and is only intended for a U.S. audience. EMD Serono is the healthcare business of Merck, KGaA, Darmstadt, Germany, in the United States ...

11 Joulu 202514min

Episode 432: Working With a Health & Wellness Coach with Amy Behimer

Episode 432: Working With a Health & Wellness Coach with Amy Behimer

Michael Jordan never won an NBA championship until he was paired with the right coach. Then, he won six. Could working with a coach change your MS journey? In this week's episode, health & wellness c...

8 Joulu 202540min

Special Episode: I'm the First Participant in a CAR-T Cell Therapy Clinical Trial with Jan Janisch-Hanzlik

Special Episode: I'm the First Participant in a CAR-T Cell Therapy Clinical Trial with Jan Janisch-Hanzlik

Welcome to a RealTalk MS special series on MS clinical trials. This special series is made possible through a generous grant from Sanofi. In this final episode of this series, you'll meet Jan Janisch-...

4 Joulu 202520min

Episode 431: When a Teenager Becomes a Caregiver For a Parent With MS with Michaela Janssen Pohl

Episode 431: When a Teenager Becomes a Caregiver For a Parent With MS with Michaela Janssen Pohl

At the age of 14, Michaela Janssen Pohl became a caregiver for her mother, who lives with MS. I think most of us can agree that just being a teenager carries with it more than enough challenges. Thos...

1 Joulu 202534min

Episode 430: Navigating Winter Weather When You're Living with MS with Dr. James Stark

Episode 430: Navigating Winter Weather When You're Living with MS with Dr. James Stark

Almost everyone with MS is aware of their sensitivity to heat. But cold weather presents a whole different set of challenges that we don't always think about. This week, I'm talking with Dr. James Sta...

24 Marras 202536min

Suosittua kategoriassa Terveys ja hyvinvointi

unicast
voi-hyvin-meditaatiot-2
tiedenaiset-podcast
psykopodiaa-podcast
vakeva-elama-viisaampi-mieli-vahvempi-keho
puhu-muru
rss-pitaisko-erota
katilon-kahvitunti
meditaatiot-suomeksi
rss-pt-paahtio
rss-uplevel-by-sonja-hannus
rss-narsisti
rss-rakas-mielenterveyteni
audio-sport-juoksu
junnut-pelissa
rss-ehjaksi
rss-mighty-finland-podcast
rss-kuumilla-aalloilla
selviytyjat-tarinoita-elamasta
rss-duodecim-lehti