Episode 55: Minority Inclusion & MS -- We are illmatic with Victoria Reese
RealTalk MS2 Loka 2018

Episode 55: Minority Inclusion & MS -- We are illmatic with Victoria Reese

A lot of people visit the RealTalk MS website to listen to each podcast episode. I wanted to make that easier to do, so last week I released the RealTalk MS app for iOS or Android smartphones and tablets. The app will always have the latest episode of RealTalk MS cued up and ready for you to listen to, and it also lets me share all kinds of bonus content with you. Head to the Apple App Store to download the iOS version of the app, or the Google Play Store to download the Android version of the app. It's the best way to stay connected to the podcast! And speaking of staying connected to the podcast, next week, the European Committee for Treatment and Research in Multiple Sclerosis is hosting the ECTRIMS 2018 Congress in Berlin, Germany. It's the largest MS conference in the world. I'll be there, and you can look forward to special episodes of RealTalk MS, next Wednesday, Thursday, and Friday, October 10th, 11th, and 12th! You'll get the news, hear the interviews, and you'll be the first to get the research updates and announcements as they're being made at the largest MS conference in the world. And if you have the RealTalk MS app, you might even find some exclusive content from ECTRIMS that will only be available in the app. So next week, connect with the RealTalk MS podcast, and I'll do my best to connect you to ECTRIMS 2018.

My guest on this week's podcast is Victoria Reese, the founder of the We Are Illmatic campaign. Earlier this year, I had an opportunity to talk with Victoria about the concept of inclusion in the MS community, and how the We Are Illmatic campaign is out to change the face of MS.

We're also talking about a research review that reminds us how very bad smoking is for people living with MS, and the results of a 10-year study in the UK about the cost-effectiveness and clinical effectiveness of 4 MS disease modifying therapies. We'll give you the details behind the congressional funding for the National Neurological Conditions Surveillance System in the U.S. And if you're African-American and living with MS, we'll tell you about how you can participate in an MS genetics study being conducted by UCSF.

We have a lot to talk about! Are you ready for RealTalk MS?

___________

Download the RealTalk MS App! 1:26

RealTalk MS Will Be in Berlin for ECTRIMS 2018 2:27

MS Society UK Publishes Research Review on Smoking & MS 4:10

10-Year Study in UK Shows MS DMT Effective for RRMS 6:25

U.S. Congress Funds National Neurological Surveillance System 9:18

UCSF Recruiting African-Americans for MS Genetic Study 13:09

Interview with Victoria Reese 16:56

___________

LINKS
If your podcast app doesn't show these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Link Between Smoking & MS Clearer Than Ever

Helpline@mssociety.org.uk (For questions about smoking & MS)

Assessing the Long-Term Effectiveness of Interferon-beta and Glatiramer Acetate in Multiple Sclerosis: Final 10-Year Results from the UK Multiple Sclerosis Risk-Sharing Scheme

Patient Groups Applaud Spending Bill That Funds Important Neuro Data System

UCSF African-American MS Genetic Study Intake Survey

msdb@ucsf.edu (For questions about UCSF African-American MS Genetic Study)

We Are Illmatic

Give RealTalk MS a Rating & Review

___________

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 55
Hosted By: Jon Strum
Guests: Victoria Reese

Tags: MS, MultipleSclerosis, weareillmatic, ECTRIMS2018, MSSocietyUK, MSActivist, UCSF, RealTalkMS

Jaksot(505)

Special Episode: Participating in MS Research with Chiquita Shepard-Knight and Earl Sneed

Special Episode: Participating in MS Research with Chiquita Shepard-Knight and Earl Sneed

Welcome to a RealTalk MS special series on MS clinical trials. This special series is made possible through a generous grant from Sanofi. In today's episode, you'll meet two participants from the TEAM...

20 Marras 202516min

Episode 429: Caring for Your Partner with MS While Holding Down a Full-Time Job with Diana Grazio

Episode 429: Caring for Your Partner with MS While Holding Down a Full-Time Job with Diana Grazio

Being a caregiver for a loved one with MS isn't an easy job. And, while it may consume hours of your time, often, it's not your only job. Many caregivers are the only family members bringing in an inc...

17 Marras 202530min

Episode 428: The Effects of Smoking, Consuming Alcohol, and Consuming Caffeine on Your MS with Dr. Barbara Giesser

Episode 428: The Effects of Smoking, Consuming Alcohol, and Consuming Caffeine on Your MS with Dr. Barbara Giesser

As researchers continue to learn about MS, it becomes clear that you can change the trajectory of your MS journey and improve your quality of life by making smart lifestyle choices. Quitting smoking a...

10 Marras 202532min

Episode 427: Science-Based Vaccine Guidance for People Living with MS with Dr. Lisa Doggett

Episode 427: Science-Based Vaccine Guidance for People Living with MS with Dr. Lisa Doggett

When you're living with a chronic condition like MS, you want to be sure you're doing everything you can to preserve and promote good health. And, right now, you may be feeling confused about whether ...

3 Marras 202527min

Episode 426: Fighting Her Way Through the Health Insurance Maze with Cassandra Ashby

Episode 426: Fighting Her Way Through the Health Insurance Maze with Cassandra Ashby

Some disease-modifying therapies can change the trajectory of your MS journey. But gaining access to those medications isn't always as easy or straightforward as it should be. In the United States, in...

27 Loka 202532min

Episode 425: The ECTRIMS 2025 Deep Dive with Dr. Bruce Bebo

Episode 425: The ECTRIMS 2025 Deep Dive with Dr. Bruce Bebo

Just about a month ago, 9,600 researchers, clinicians, and representatives from patient advocacy organizations gathered in Barcelona for the European Committee on Treatment and Research in MS annual s...

20 Loka 202533min

Episode 424: I'm a Participant in a Clinical Trial for CAR-T Cell Therapy and MS with Jan Janisch-Hanzlik

Episode 424: I'm a Participant in a Clinical Trial for CAR-T Cell Therapy and MS with Jan Janisch-Hanzlik

Jan Janisch-Hanzlik lives with MS and is a participant in one of the clinical trials evaluating the safety and efficacy of CAR-T cell therapy for MS. Jan is the first person in the world to receive th...

13 Loka 202533min

Special Episode: The Risks and Rewards of Participating in Clinical Trials with Dr. Kathy Zackowski and Mimi Brown

Special Episode: The Risks and Rewards of Participating in Clinical Trials with Dr. Kathy Zackowski and Mimi Brown

Welcome to a RealTalk MS special series on MS clinical trials. This special series is made possible through a generous grant from Sanofi. In today's episode, we're exploring the risks and rewards of...

10 Loka 202521min

Suosittua kategoriassa Terveys ja hyvinvointi

unicast
voi-hyvin-meditaatiot-2
tiedenaiset-podcast
psykopodiaa-podcast
vakeva-elama-viisaampi-mieli-vahvempi-keho
puhu-muru
rss-pitaisko-erota
katilon-kahvitunti
meditaatiot-suomeksi
rss-pt-paahtio
rss-uplevel-by-sonja-hannus
rss-narsisti
rss-rakas-mielenterveyteni
audio-sport-juoksu
junnut-pelissa
rss-ehjaksi
rss-mighty-finland-podcast
rss-kuumilla-aalloilla
selviytyjat-tarinoita-elamasta
rss-duodecim-lehti