Episode 117: Caregiver Strategies with Penny Patnaude
RealTalk MS26 Marras 2019

Episode 117: Caregiver Strategies with Penny Patnaude

November is National Family Caregiver Month, and while I was at the 4th Annual National Caregiving Conference in Chicago, I met this week's guest, Caregiver Strategist Penny Patnaude. Penny and I talked about some of the things that caregivers want to be thinking about in planning their own strategy for providing great care to their loved one without losing themselves in the process. I'll also introduce you to Dr. Lindsey Knowles, a young MS rehabilitation researcher who will give us an insider's look at what the Tykeson Fellows Conference is all about, and why it's so important for the future of MS research. We're also talking about the cannabis-based treatment for MS spasticity that was approved in the U.K. You'll hear about last week's International Progressive MS Alliance meeting in Amsterdam, and we'll tell you about an investigational therapy that can reset the immune system in the mouse model of MS in a single dose. We'll remind you that if you're a young adult, between 18 and 45 years old, First Descents is offering you a week-long ski trip to Crested Butte, Colorado. And it's FREE! (Don't worry, we'll tell you how and where to begin the application process!) You'll hear about the research team in Montreal that may have found a way to stop MS progression. And we'll tell you how easy it is to share this episode of RealTalk MS with family and friends! We have a lot to talk about! Are you ready for RealTalk MS??! ___________ Thanks for all the kind words! :22

The National MS Society & RealTalk MS Partnership :52

Join the Conversation! Get In Touch with RealTalk MS 2:21

The Progressive MS Alliance Meeting in Amsterdam 3:32

The Tykeson Fellows Conference & My Conversation with Dr. Lindsey Knowles 5:26

Sativex Approved in U.K. for MS Spasticity 11:12

Single Dose of Investigational Therapy Resets the Immune System in Mouse-Model of MS 13:19

First Descents Offers a FREE Ski Trip to Crested Butte to Young Adults Living with MS 15:39

Canadian Research Team Says They May Be Able to Stop MS Progression 17:51

My Interview with Caregiver Strategist Penny Patnaude 19:51

Share This Episode 27:11

How to Subscribe to RealTalk MS, Download the RealTalk MS App, or Listen with Alexa 27:36

___________

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email:
https://realtalkms.com/117

___________

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

___________

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Give RealTalk MS a Rating & Review

The National MS Society & RealTalk MS Announce a Partnership

The International Progressive MS Alliance

Administration of a CD45 Antibody Drug Conjugate as a Novel, Targeted Approach to Achieve Immune System Reset: A Single Dose of CD45-targeted ADC Safely Conditions for Autologous Transplant and Ameliorates Disease in Multiple Models of Immune Disease

First Descents Skiing at Crested Butte

Activated Leukocyte Cell Adhesion Molecule Regulates B Lymphocyte Migration Across Central Nervous System Barriers

The Caregiver Strategist

Give RealTalk MS a Rating & Review

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

___________

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 117
Hosted By: Jon Strum
Guests: Penny Patnaude

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, Caregiving, Sativex, Stemcells, FirstDescents, RealTalkMS

Privacy Policy

Tämä jakso on lisätty Podme-palveluun avoimen RSS-syötteen kautta eikä se ole Podmen omaa tuotantoa. Siksi jakso saattaa sisältää mainontaa.

Jaksot(519)

Episode 465: On Being an MS Specialist In A Country That Believed MS Was Non-Existent with Dr. Avinash Chandra

Episode 465: On Being an MS Specialist In A Country That Believed MS Was Non-Existent with Dr. Avinash Chandra

During his fellowship in the United States, Dr. Avinash Chandra trained to become an MS specialist at a world-class MS center. Then he returned home to Nepal and discovered that MS was largely conside...

27 Heinä 37min

Episode 464: Sharing Her MS Journey Graphically with Liat Shalom

Episode 464: Sharing Her MS Journey Graphically with Liat Shalom

If you've spent any time at all living with or caring for someone with multiple sclerosis, you know that medical textbooks and information-filled websites can give us facts, figures, and symptoms, but...

20 Heinä 32min

Episode 463: A Novel Approach to Treating MS-Related Depression with Dr. Robert Motl and Kelly

Episode 463: A Novel Approach to Treating MS-Related Depression with Dr. Robert Motl and Kelly

Living with depression has been described as "like living under a wet, heavy blanket". It can stop someone from showing up at work, meeting up with friends, and even connecting with their family.  One...

13 Heinä 37min

Episode 462: Taking Your MS to College? Understand Your Right to Accommodation with Britt Neff

Episode 462: Taking Your MS to College? Understand Your Right to Accommodation with Britt Neff

The Americans with Disabilities Act ensures that people living with disabilities receive reasonable accommodations at work. That law also applies to students attending most colleges and universities. ...

6 Heinä 30min

Episode 461: A New Disease-Modifying Therapy Has Been Submitted for FDA Approval with Dr. Jiwon Oh

Episode 461: A New Disease-Modifying Therapy Has Been Submitted for FDA Approval with Dr. Jiwon Oh

A short while ago, we shared very positive results from the Phase 3 clinical trials for fenebrutinib in both relapsing-remitting and primary progressive MS. Those results have been submitted to the FD...

29 Kesä 34min

Episode 460: Running Ireland with MS with Matt Knaggs and Colin Goodman

Episode 460: Running Ireland with MS with Matt Knaggs and Colin Goodman

Next week, Matt Knaggs and Colin Goodman will attempt to set a Guinness World Record for running the 350-mile length of Ireland with MS. This week, you'll meet Matt and Colin and learn why this undert...

22 Kesä 33min

Episode 459: This Is Not Your Father's MS Rehabilitation with Dr. Brian Sandroff, Dr. Brad Willingham, and Dr. Laura Rice

Episode 459: This Is Not Your Father's MS Rehabilitation with Dr. Brian Sandroff, Dr. Brad Willingham, and Dr. Laura Rice

For years, the standard medical advice for someone diagnosed with multiple sclerosis was simple, cautious, and as we now know, incredibly limiting: "Take it easy. Don't overexert yourself. And get ple...

15 Kesä 47min

Episode 458 -- From the 2026 CMSC Annual Meeting: Part Two with Dr. Stephen Krieger

Episode 458 -- From the 2026 CMSC Annual Meeting: Part Two with Dr. Stephen Krieger

This week, our coverage of the Consortium of MS Centers annual meeting continues with my guest, Dr. Stephen Krieger. In a wide-ranging conversation, Dr. Krieger offers a very encouraging clinical tria...

8 Kesä 31min

Suosittua kategoriassa Terveys ja hyvinvointi

unicast
vakeva-elama-viisaampi-mieli-vahvempi-keho
tiedenaiset-podcast
psykopodiaa-podcast
meditaatiot-suomeksi
rss-pitaisko-erota
voi-hyvin-meditaatiot-2
rss-seksicast
rss-pt-paahtio
selviytyjat-tarinoita-elamasta
rss-kuumilla-aalloilla
terapiassa
paritellen
junnut-pelissa
rss-perho-rajoilla
mielen-puolikkaat
mielipaivakirja
rss-mighty-finland-podcast
rss-narsisti
rss-hereilla