Episode 129: MS Advocacy in 2020 with Bari Talente
RealTalk MS21 Helmi 2020

Episode 129: MS Advocacy in 2020 with Bari Talente

In just two weeks, the National MS Society is hosting its annual Public Policy Conference in Washington, D.C. The centerpiece of that conference is our Day On The Hill when 300 MS Activists meet with our Congressional Representatives and Senators to discuss the legislative issues that are most important to people affected by MS. My guest is Bari Talente, the Executive Vice President of Advocacy for the National MS Society and we're talking all about this year's Public Policy Conference and the value and importance of advocacy. We'll also let you know how and where to sign up for Discovering Life-Changing Treatments for Progressive MS, the global webcast from the International Progressive MS Alliance. (You have to hurry! It's happening in 2 days!) You'll hear about an encouraging study of the effectiveness of stem cell therapy for some people living with secondary progressive MS. We're also talking about why you might want to support Jon in this year's Walk MS. And you'll learn about a non-invasive breakthrough technology that provides a detailed assessment of the status of MS progression and the effectiveness of disease-modifying therapy...in 10 seconds. We have a lot to talk about! Are you ready for RealTalk MS??! ___________ Sharing Some Crazy Statistics :44

We're Just 2 Weeks Away From the Public Policy Conference 2:27

Register for the Global Webcast: Discovering Life-Changing Treatments for Progressive MS 3:39

You Can Support Jon in WALK MS 4:54

HSCT Shows Benefits in Some People with Secondary Progressive MS 6:23

New Eye-Tracking Tech Uses AI to Monitor MS 9:09

My Interview with Bari Talente 11:54

Share This Episode 26:03

Reminder...Please Donate to Walk MS 26:28

Download the RealTalk MS App 27:03

___________

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/129

___________

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

___________

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Jon's WALK MS Fundraising Page

Register for the International Progressive MS Alliance Global Webcast: Discovering Life-Changing Treatments for Progressive MS

Low-Intensity Lympho-Ablative Regimen Followed by Autologous Hematopoietic Stem Cell Transplantation in Severe Forms of Multiple Sclerosis: A MRI-Based Clinical Study

BEAT-MS Clinical Trial

C. Light Technologies

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Give RealTalk MS a Rating & Review

___________

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 129
Hosted By: Jon Strum
Guests: Bari Talente

Tags: MS, MultipleSclerosis, MSResearch, MSActivist, MSSociety, RealTalkMS

Privacy Policy

Tämä jakso on lisätty Podme-palveluun avoimen RSS-syötteen kautta eikä se ole Podmen omaa tuotantoa. Siksi jakso saattaa sisältää mainontaa.

Jaksot(525)

Episode 471: Navigating an MS Relapse with Dr. F. Gabriela Karolidis

Episode 471: Navigating an MS Relapse with Dr. F. Gabriela Karolidis

Relapses make life with MS unpredictable. Understanding what they are, why they happen, and how best to manage them can make a relapse less scary and easier to navigate.   This week, Dr. Gabriela Kar...

7 Syys 40min

Episode 470: 42 Marathons in 42 Days with Benji Wilkins

Episode 470: 42 Marathons in 42 Days with Benji Wilkins

Wise men and women remind us that life is a marathon, and not a sprint. Joining us this week is Benji Wilkins. Benji is a magician in the U.K., and for 42 days this summer, his life was quite literall...

31 Elo 30min

Episode 469: Maintaining and Even Improving Cognitive Function If You're Living with MS with Dr. Anna Kratz

Episode 469: Maintaining and Even Improving Cognitive Function If You're Living with MS with Dr. Anna Kratz

Cognitive changes in MS—fluctuations in processing speed, memory, and executive function—can significantly impact daily life, yet they're often misunderstood or overlooked in routine clinical exams. T...

24 Elo 43min

Episode 468: You've Been Given a 15% Chance of Living and Your Spouse Gets Diagnosed with MS with Kathleen Silva

Episode 468: You've Been Given a 15% Chance of Living and Your Spouse Gets Diagnosed with MS with Kathleen Silva

Imagine your spouse or significant other has been diagnosed with MS...shortly after you were diagnosed with stage IV colon cancer, and given just a 15% chance of survival. All of a sudden, the roles o...

17 Elo 38min

Episode 467: Making Shared Decision-Making Work with Dr. Aliza Ben-Zacharia and Linda Lachman

Episode 467: Making Shared Decision-Making Work with Dr. Aliza Ben-Zacharia and Linda Lachman

If you Google the term "shared decision making", you'll find it defined as a collaborative process where patients and clinicians work together to select tests, treatments, and care plans based on clin...

10 Elo 33min

Episode 466: Everything You Ought to Know About Diet and MS with Dr. Tyler Titcomb

Episode 466: Everything You Ought to Know About Diet and MS with Dr. Tyler Titcomb

We get more listener emails about diet and MS than almost any other topic. If you're curious about how some of the well-known diets for MS actually stack up, or you're interested in understanding the ...

3 Elo 27min

Episode 465: On Being an MS Specialist In A Country That Believed MS Was Non-Existent with Dr. Avinash Chandra

Episode 465: On Being an MS Specialist In A Country That Believed MS Was Non-Existent with Dr. Avinash Chandra

During his fellowship in the United States, Dr. Avinash Chandra trained to become an MS specialist at a world-class MS center. Then he returned home to Nepal and discovered that MS was largely conside...

27 Heinä 37min

Episode 464: Sharing Her MS Journey Graphically with Liat Shalom

Episode 464: Sharing Her MS Journey Graphically with Liat Shalom

If you've spent any time at all living with or caring for someone with multiple sclerosis, you know that medical textbooks and information-filled websites can give us facts, figures, and symptoms, but...

20 Heinä 32min

Suosittua kategoriassa Terveys ja hyvinvointi

unicast
aamukahvilla
psykopodiaa-podcast
rss-pitaisko-erota
vakeva-elama-viisaampi-mieli-vahvempi-keho
meditaatiot-suomeksi
tiedenaiset-podcast
voi-hyvin-meditaatiot-2
terapiassa
rss-kuumilla-aalloilla
paritellen
rss-pt-paahtio
katilon-kahvitunti
paaasia-podcast
rss-uplevel-by-sonja-hannus
rss-terapiaklubi
selviytyjat-tarinoita-elamasta
rss-vapaudu-voimaasi
rss-sanelunpurku-podcast
fitnesskuplassa