RealTalk MS19 Loka 2020

Episode 164: Understanding Pediatric MS with Hannah Schnitzler, Melissa Fisher, and Dr. Brenda Banwell

MS doesn't only affect individuals. It affects families. And that's probably most clear when we're talking about pediatric MS. The National MS Society estimates that there are about 5,000 diagnosed cases of pediatric MS in the United States and less than 10,000 cases worldwide, but those numbers become far less important when your child is one of those diagnosed cases. We're taking a deep dive into pediatric MS with Hannah Schnitzler, who lives with pediatric MS, Hannah's mom, Melissa Fisher, and pediatric MS expert Dr. Brenda Banwell. We're also talking about study results that show a simple sugar that's available over the counter is effective in preventing myelin degeneration in the mouse model of MS. And we'll tell you how a research team at the University of Chicago went about designing a novel MS therapy that's been demonstrated to promote myelin repair and even stop MS from developing in the mouse model of MS. You'll hear about the first oral disease-modifying therapy that's been approved to treat active secondary progressive MS in England, Wales, and Scotland. And we'll tell you how you can be a part of future MS research projects. We have a lot to talk about! Are you ready for RealTalk MS??!

Study shows an over-the-counter simple sugar promotes myelin repair in mouse model of MS 1:31

Researchers design a new MS therapy that reduces MS symptoms and even prevents MS from developing in mouse model of MS 3:15

Mayzent approved for treating secondary progressive MS in England, Wales, and Scotland 5:28

Online survey for parents of a child living with pediatric MS 8:02

My Interview with pediatric MS patient Hannah Schnitzler and her mom 9:22

My Interview with pediatric MS expert Dr. Brenda Banwell 21:57

Share this episode 42:00

Donate to the National MS Society COVID-19 Response Fund 42:21

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LINKS

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National MS Society's Ask An MS Expert Video Replay

What You Need to Know About Coronavirus (COVID-19)

STUDY: N-acetylglucosamine Drives Myelination By Triggering Oligodendrocyte Precursor Cell Differentiation

STUDY: Prolonged Residence of an Albumin-IL-4 Fusion Protein in Secondary Lymphoid Organs Ameliorates Experimental Autoimmune Encephalomyelitis

SURVEY: University of Washington Multiple Sclerosis Rehabilitation & Wellness Center Research Participant Survey

SURVEY: Parents of a Child with Pediatric MS (English)

SURVEY: Parents of a Child with Pediatric MS (Spanish)

National MS Society COVID-19 Response Fund

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RealTalk MS Episode 164
Guests: Hannah Schnitzler, Melissa Fisher & Dr. Brenda Banwell

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist, PediatricMS, RealTalkMS

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