2.16 Why Get Diagnosed? - Part Two
On this week's episode, the Two Bendy Mommas continue to discuss why they think it’s a smart idea to use your spoons to get diagnosed. They discuss some of the the benefits of going through the diagno...
18 Heinä 202444min
2.15 Why Get Diagnosed?
On this week's episode, the Two Bendy Mommas discuss why they think it’s a smart idea to use your spoons to get diagnosed. They discuss some of the the benefits of going through the diagnostic journey...
11 Heinä 20241h 18min
2.14 - Hypermobile Dudes Part 3: The Conclusion
This week, Luna, Shelli, and our special guest panel members Brandon Buccieri (@susanpossibly), Doug Kremer (@DougKrem) and Bryan Jewell (@kindaspoony) wrap up their discussion on how Hypermobile Ehle...
27 Kesä 202446min
2.13 - Patient Advocacy & Insurance
We're back this week with the final segment of our interview with Megan Karanfil to dive deeper into her role as a patient advocate, how advocates can help, and why they're so important to patients, e...
13 Kesä 202426min
2.12 - Hypermobile Dudes Part 2: An Interview Panel With Three Men With hEDS
The Bendy Mommas continue to look into understanding the intersectionality of Hypermobility by talking to some Bendy Dudes. We gathered a panel of men with Hypermobile Ehlers-Danlos Syndrome (hEDS) to...
30 Touko 202443min
2.11 - The Conversation With a Patient Advocate, Part 3
Two episodes in one day? Why not? We're back this week with Part 3 of our interview with Megan Karanfil to dive deeper into her role as a patient advocate, how advocates can help, and why they're so ...
23 Touko 202437min
2.10 - Hypermobile Dudes Part 1: An Interview Panel With Three Men With hEDS
On this week's episode, Luna and Shelli discuss how Hypermobile Ehlers-Danlos Syndrome affects an often underrepresented community within our Zebra Herd: Men. In our first-ever panel interview, we tal...
23 Touko 202454min
2.9 - The Conversation With a Patient Advocate Continues
We're back this week with Part 2 of our interview with Megan Karanfil to dive deeper into her role as a patient advocate, how advocates can help, and why they're so important to patients, especially "...
16 Touko 202435min
