2.15 Why Get Diagnosed?
On this week's episode, the Two Bendy Mommas discuss why they think it’s a smart idea to use your spoons to get diagnosed. They discuss some of the the benefits of going through the diagnostic journey...
11 Heinä 20241h 18min
2.14 - Hypermobile Dudes Part 3: The Conclusion
This week, Luna, Shelli, and our special guest panel members Brandon Buccieri (@susanpossibly), Doug Kremer (@DougKrem) and Bryan Jewell (@kindaspoony) wrap up their discussion on how Hypermobile Ehle...
27 Kesä 202446min
2.13 - Patient Advocacy & Insurance
We're back this week with the final segment of our interview with Megan Karanfil to dive deeper into her role as a patient advocate, how advocates can help, and why they're so important to patients, e...
13 Kesä 202426min
2.12 - Hypermobile Dudes Part 2: An Interview Panel With Three Men With hEDS
The Bendy Mommas continue to look into understanding the intersectionality of Hypermobility by talking to some Bendy Dudes. We gathered a panel of men with Hypermobile Ehlers-Danlos Syndrome (hEDS) to...
30 Touko 202443min
2.11 - The Conversation With a Patient Advocate, Part 3
Two episodes in one day? Why not? We're back this week with Part 3 of our interview with Megan Karanfil to dive deeper into her role as a patient advocate, how advocates can help, and why they're so ...
23 Touko 202437min
2.10 - Hypermobile Dudes Part 1: An Interview Panel With Three Men With hEDS
On this week's episode, Luna and Shelli discuss how Hypermobile Ehlers-Danlos Syndrome affects an often underrepresented community within our Zebra Herd: Men. In our first-ever panel interview, we tal...
23 Touko 202454min
2.9 - The Conversation With a Patient Advocate Continues
We're back this week with Part 2 of our interview with Megan Karanfil to dive deeper into her role as a patient advocate, how advocates can help, and why they're so important to patients, especially "...
16 Touko 202435min
