#70 - Discussing the JACO Robotic Arm with Ron Borgschulte
In episode 70, host Kevin Schaefer and Michael Morale talk with entrepreneur Ron Borgschulte. Ron is the owner of Partners in Medicine, a company that works with Kinova Robotics to distribute assistive technologies to people in the United States. Since working with Kinova, Ron has played an important role in helping clients acquire devices like the JACO robotic arm. He talks about his experiences with the SMA community and answers questions about the JACO arm. ================================ To learn more about Evrysdi, please visit http://www.ApprovedForSMA.com ================================ To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums ================================ For the most up-to-date information regarding SMA, please visit http://www.smanewstoday.com
17 Marras 202034min
Muscle MRI Captures Spinraza’s Effects on Tissue Fibers in Type 3 Brothers
SMA News Today’s multimedia associate, Price Wooldridge, discusses how a muscle MRI captures Spinraza’s effects on tissue fibers in two brothers with Type 3 Spinal Muscular Atrophy (SMA). DeAnn Runge talks about the frustrations that come along with adjusting to a new wheelchair. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
16 Marras 20208min
NICE Reviews UK Spinraza Reimbursement for SMA Type 3 Patients Unable to Walk
SMA News Today’s multimedia associate, Price Wooldridge, discusses England’s National Institute for Health and Care Excellence (NICE) review of reimbursement for SMA Type 3 patients who are unable to walk. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
13 Marras 20204min
The Importance Of Balance While Maneuvering On Uneven Surfaces For People With SMA
Forums Director Kevin Schaefer reads from an article on our healthcare professional site, in which a physical therapist talks about the importance of balance while maneuvering on uneven surfaces for people with SMA. In the forums Evrysdi remains a hot topic from the need to confirm genetic SMA results to switching from Spinraza to Everysdi. Other topics include celebrating the holidays differently and apps to manage your health. To learn more about spinal muscular atrophy, visit our website at http://www.smanewstoday.com.
11 Marras 20206min
Muscle-directed Therapy SRK-015 Improves Motor Function in SMA Types 2 and 3 & Hibernation in Winter
SMA News Today’s multimedia associate, Price Wooldridge, discusses muscle-directed therapy SRK-015 and improving motor function in Spinal Muscular Atrophy (SMA) Types 2 and 3. DeAnn Runge discusses how hibernation is getting old, yet she’s struggling deciding what risks are safe enough for her take. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
9 Marras 202012min
Evrysdi Approved in Brazil for Spinal Muscular Atrophy (SMA)
SMA News Today’s multimedia associate, Price Wooldridge, discusses Evrysdi’s approval in Brazil for Spinal Muscular Atrophy (SMA). Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
6 Marras 20205min
Spending Time In & Out Of You Chair So You Give Your Body The Balance It Requires & Managing Stress
Forums Director Kevin Schaefer talks about spending time in and out of his chair, in order to give his body the balance it requires. DeAnn Runge talks about a podcast she did with Kevin Schaefer as well as shares the latest forum topics. Among them include managing stress, pet dilemmas and beach products. To learn more about spinal muscular atrophy, visit our website at www.smanewstoday.com.
4 Marras 20206min
#69 - Interview With Lamondre Pough
In this episode, host Kevin Schaefer talks with LaMondré Pough from Columbia, South Carolina. Lamondré is a public speaker, consultant, and advocate for people with disabilities. He currently serves as the CSO for Ruh Global Impact. Listen to LaMondré talk about his education and family life, career path, and where he got the nickname “Bubba.” ================================ Link to LaMondré’s YouTube Channel: https://www.youtube.com/channel/UCMz-pPI31RslUGXuCK2UkkQ ================================ Link to Helen Baldwin’s column: https://smanewstoday.com/columns/2019/09/11/assignment-student-brockman-south-carolina/ ================================ To learn more about Evrysdi, please visit http://www.ApprovedForSMA.com ================================ To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums ================================ For the most up-to-date information regarding SMA, please visit http://www.smanewstoday.com
3 Marras 202048min
