#117: Delphine Andrews and Kevin Davis, Interabled Couple

SMA News Today’s multimedia associate, Price Wooldridge, discusses how people living with Spinal Muscular Atrophy (SMA) can apply for financial help for treatment to the PAN Foundation. DeAnn Runge talks about what changes she makes to her routine as winter sets in. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/

2 Marras 20206min

SMA News Today’s multimedia associate, Price Wooldridge, discusses Adults with SMA who have sought specialty care after Spinraza’s approval, may have more severe disease. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/

30 Loka 20206min

Forums Director Kevin Schaefer reads from one of his older columns about embracing the imaginative spirit of Halloween. Plenty of conversations are happening in the forums. In her recent column Brianna Albers shares her feelings about insurance denying her quest for a JACO Robotic Arm. Several topics have revolved around caregivers. Cold feet, in the literal and figurative sense are also among the conversations in the forums. To learn more about spinal muscular atrophy, visit our website at http://www.smanewstoday.com.

28 Loka 20207min

SMA News Today’s multimedia associate, Price Wooldridge, discusses the “Think 3 at 3 Months” drive, seeking to raise awareness of infant movement milestones that, if missed, could mean Spinal Muscular Atrophy (SMA) or other neuromuscular conditions. DeAnn Runge talks about the difficulties of navigating the healthcare system to obtain PCA services. She’s looking into Consumer-Directed Community Supports (CDCS) as an option. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/

26 Loka 20207min

SMA News Today’s multimedia associate, Price Wooldridge, discusses SMA Type 3 adults may have issues regulating a component of cell’s cytoskeleton, according to a study. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/

23 Loka 20206min

Forums Director Kevin Schaefer talks about memories of a dying shopping mall in his hometown, and how it made him think about adapting to change. DeAnn Runge shares the latest column by Brianna Albers, The Evrysdi Chronicles: Waiting for a Diagnosis, where she writes about her frustrating neurology appointment. To learn more about spinal muscular atrophy, visit our website at http://www.smanewstoday.com.

21 Loka 202010min

In this episode, host Kevin Schaefer talks with DeAnn Runge, vlogger and forum moderator for SMA News Today. DeAnn talks about acquiring her new service dog, Horton, and adapting to life with him. She also discusses testing out a JACO robotic arm, and getting a new wheelchair. Finally, Kevin and DeAnn chat about a few recent columns from our main website. ================================ To learn more about Evrysdi, please visit http://www.ApprovedForSMA.com ================================ To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums ================================ For the most up-to-date information regarding SMA, please visit http://www.smanewstoday.com

20 Loka 202046min

SMA News Today’s multimedia associate, Price Wooldridge, discusses 4-aminopyridine’s failure to improve muscle function in SMA Type 3 patients. DeAnn Runge talks about how her new service dog Horton is adjusting to life in Minnesota. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/

19 Loka 20208min