Navigating POTS: A Mother's Journey of Advocacy and Hope

Navigating POTS: A Mother's Journey of Advocacy and Hope

Welcome to another episode of 'Let's Talk about the POTS Life.' In this episode, we hear from Christy as she shares the four-year journey of her son, Gannon, who has been dealing with POTS (Postural Orthostatic Tachycardia Syndrome). Christy describes the challenges, misdiagnoses, and the eventual diagnosis that shed light on Gannon's condition. We also learn about the supportive role of key individuals and how Gannon's mental and physical health is steadily improving. This compelling narrative highlights the importance of parental advocacy, early diagnosis, and the varying presentations of POTS.

Tämä jakso on lisätty Podme-palveluun avoimen RSS-syötteen kautta eikä se ole Podmen omaa tuotantoa. Siksi jakso saattaa sisältää mainontaa.

Jaksot(59)

The Hidden Connections Between POTS, EDS, Hypermobility & Chronic Pain with Dr. Linda Bluestein

The Hidden Connections Between POTS, EDS, Hypermobility & Chronic Pain with Dr. Linda Bluestein

Living with chronic pain, hypermobility, POTS, or other complex conditions can make it difficult to connect the dots. In this episode, I sit down with Dr. Linda Bluestein, a board-certified physician ...

4 Elo 28min

Accepting Life After a POTS Diagnosis: Grief, Control & Building Your Support Team

Accepting Life After a POTS Diagnosis: Grief, Control & Building Your Support Team

Receiving a POTS diagnosis can be both validating and overwhelming. After finally getting answers, many people are surprised to learn there isn't a quick fix and that managing POTS often requires cons...

20 Heinä 19min

Dr. Marie-Claire Seeley on POTS, EDS & Changing the Future of Care

Dr. Marie-Claire Seeley on POTS, EDS & Changing the Future of Care

Dr. Marie-Claire Seeley is a registered nurse, researcher, Founder and Volunteer CEO of the Australian POTS Foundation, and one of the leading voices advancing POTS research, education, and advocacy.I...

30 Kesä 51min

Learning to Trust Your Body Again with POTS

Learning to Trust Your Body Again with POTS

How do you start trusting your body again after a POTS diagnosis?In this episode, Kelsey and Brit talk about the fear of doing everyday activities when your symptoms feel unpredictable. From weddings ...

16 Kesä 16min

POTS, EDS & Hypermobility: What Patients and Parents Need to Know with Dr. Cohen Solomon

POTS, EDS & Hypermobility: What Patients and Parents Need to Know with Dr. Cohen Solomon

What is the connection between POTS, hypermobile Ehlers-Danlos syndrome (hEDS), and hypermobility?In this episode, I sit down with Dr. Cohen Solomon, board-certified pediatrician, educator, and patien...

2 Kesä 50min

POTS, Advocacy, and The Dysautonomia Workbook with Joanna Behm

POTS, Advocacy, and The Dysautonomia Workbook with Joanna Behm

In this episode of Let’s Talk About The POTS Life, we sit down with Joanna Behm, occupational therapist, dysautonomia advocate, and co-author of The Dysautonomia Workbook. Joanna shares her personal j...

19 Touko 26min

What to Do After a POTS Diagnosis (Electrolytes, Exercise, and Common Mistakes)

What to Do After a POTS Diagnosis (Electrolytes, Exercise, and Common Mistakes)

If you’ve recently been diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome), it can feel overwhelming figuring out what actually helps.In this episode, we break down what to focus on early...

5 Touko 21min

Pelvic Floor Dysfunction and POTS

Pelvic Floor Dysfunction and POTS

GI symptoms, pain clues, and why a consult mattersIn this episode of Let’s Talk About the POTS Life, we break down the connection between POTS and pelvic floor dysfunction and why it’s often overlooke...

23 Huhti 15min

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