About IBD20 Touko 2025

GetYourBellyOut: Picturing Hope for IBD Featuring Victoria Marie

In this episode, Victoria, founder of GetYourBellyOut, shares her journey with ulcerative colitis and the importance of community support for those with inflammatory bowel disease (IBD). She discusses her diagnosis experience, the challenges of navigating healthcare, and the need for better patient advocacy. Victoria highlights the organization's growth, its initiatives like the IBD Nurse Helpline leaflets, and the significance of connecting patients with healthcare providers. She emphasizes the importance of funding to expand their services and create more opportunities for support, while also reflecting on the personal connections that drive her passion for this work. Topics covered on this episode:

Personal journey with ulcerative colitis and diagnosis experience
Emotional and physical challenges of living with inflammatory bowel disease (IBD)
Importance of community support and connection for individuals with chronic illnesses
Founding and evolution of the organization "GetYourBellyOut"
Advocacy and awareness efforts for IBD and its impact on patients
Family dynamics and the effects of IBD on relationships
Role of social media in connecting individuals with IBD
Challenges of being a public figure in the IBD community
Importance of patient feedback in improving care and resources
Future goals and initiatives for expanding support and resources for those affected by IBD

Find GetYourBellyOut on:

Find Amber J Tresca at:

AboutIBD.com: About IBD
Verywell: Verywell Health
Facebook: @aboutIBD
Twitter: @aboutIBD
Pinterest: @aboutibd
Instagram: @about_IBD
YouTube: @AboutIBD
Threads: @about_IBD

Find Mac Cooney (mix, sound design, and theme music) at:

Facebook: @maccooneycomposer
Instagram: @maccooneycomposer
Web: Cooney Studio
YouTube: @MacCooneyComposer
Theme music, IBD Dance Party, is from ©Cooney Studio.

Episode transcript and more information at: https://bit.ly/AIBD175 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

Tämä jakso on lisätty Podme-palveluun avoimen RSS-syötteen kautta eikä se ole Podmen omaa tuotantoa. Siksi jakso saattaa sisältää mainontaa.

Jaksot(200)

How to Protect Yourself in the Age of AI

Artificial intelligence (AI) is here to stay. How can we approach AI with both curiosity and caution, especially as it becomes more integrated into daily life? If we're not aware of it and looking for...

20 Tammi 54min

How to Bring an Intention to Your 2026

We explore the idea of setting intentions instead of resolutions in the new year, which are more adaptable for people living with IBD. Amber shares clips from guests who explain their intentions, such...

30 Joulu 202513min

Amber's Year in Books 2025

Looking for your next great read? Host of About IBD, Amber Tresca, gives her year-end roundup of books, with brief summaries and her reflections on each. The selections cover a mix of genres, from spe...

16 Joulu 202537min

How To Build Resilience and Manage Life With IBD Featuring Kinsey Beagley

Episode transcript and more information at: https://bit.ly/AIBD191 Kinsey Beagley, a pediatric medical assistant diagnosed with ulcerative colitis at 15, shares about her experiences with IBD, includi...

2 Joulu 202529min

The Truth About Surviving IBD and Incontinence

Katryna Loewen, a registered nurse diagnosed with ulcerative colitis in 2020, shares her journey through severe flare-ups, incontinence, and her decision to have a colectomy and ileostomy in 2024. She...

18 Marras 202545min

What You Need to Know About IBD and Gastroparesis Featuring Samantha Sauer, BCPA of G-PACT

Samantha Sauer, BCPA, president of Gastroparesis Patient Association for Cures and Treatments (G-PACT), uncovers the challenges of living with gastroparesis and how it can overlap with IBD or other co...

4 Marras 202540min

The Truth About Stigma and Acetaminophen Use During Pregnancy Featuring Mariah Leach, JD, MS

Amber and Mariah discuss how women with chronic illnesses cope with advice on medication use in pregnancy—especially in light of the confusion around acetaminophen. Mariah shares her experiences with ...

15 Loka 202544min

How To Stay Active With IBD Featuring Sean Lochran

Sean Lochran, who lives with IBD and an ileostomy, describes his IBD journey, including complications such as blood clots and adrenal insufficiency. Sean shares advice for staying active on difficult ...

7 Loka 202537min