GetYourBellyOut: Picturing Hope for IBD Featuring Victoria Marie
About IBD20 Touko 2025

GetYourBellyOut: Picturing Hope for IBD Featuring Victoria Marie

In this episode, Victoria, founder of GetYourBellyOut, shares her journey with ulcerative colitis and the importance of community support for those with inflammatory bowel disease (IBD). She discusses her diagnosis experience, the challenges of navigating healthcare, and the need for better patient advocacy. Victoria highlights the organization's growth, its initiatives like the IBD Nurse Helpline leaflets, and the significance of connecting patients with healthcare providers. She emphasizes the importance of funding to expand their services and create more opportunities for support, while also reflecting on the personal connections that drive her passion for this work. Topics covered on this episode:
  • Personal journey with ulcerative colitis and diagnosis experience
  • Emotional and physical challenges of living with inflammatory bowel disease (IBD)
  • Importance of community support and connection for individuals with chronic illnesses
  • Founding and evolution of the organization "GetYourBellyOut"
  • Advocacy and awareness efforts for IBD and its impact on patients
  • Family dynamics and the effects of IBD on relationships
  • Role of social media in connecting individuals with IBD
  • Challenges of being a public figure in the IBD community
  • Importance of patient feedback in improving care and resources
  • Future goals and initiatives for expanding support and resources for those affected by IBD
Find GetYourBellyOut on: Find Amber J Tresca at: Find Mac Cooney (mix, sound design, and theme music) at: Episode transcript and more information at: https://bit.ly/AIBD175 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

Jaksot(200)

How Tech is Changing Gastroenterology

How Tech is Changing Gastroenterology

Amber and gastroenterologist Dr Neil Parikh discuss technology's impact on IBD management. Dr Parikh emphasizes the importance of patient diaries and open communication between patients and providers....

6 Touko 202527min

Reclaiming Joy in Eating with IBD Featuring Stacey Collins, MA, RDN/LDN

Reclaiming Joy in Eating with IBD Featuring Stacey Collins, MA, RDN/LDN

People with Crohn's disease or ulcerative colitis (forms of inflammatory bowel disease, or IBD) were told for many decades that diet didn't affect the disease. Even today, some patients are still told...

22 Huhti 202557min

Infusion Hero: Stylish Hoodies for Young Patients Featuring Rachel Bee

Infusion Hero: Stylish Hoodies for Young Patients Featuring Rachel Bee

IBD patients are innovative, resilient, and powerful. My guest, Rachel Bee, is an incredible example of all these virtues. Rachel is a remarkable 17-year-old entrepreneur who was diagnosed with Crohn'...

8 Huhti 202533min

Freelancing Freedom: Crafting Your Career While Caring for Your Health

Freelancing Freedom: Crafting Your Career While Caring for Your Health

It's not easy to manage both a career and chronic illness like inflammatory bowel disease (IBD, Crohn's disease, or ulcerative colitis). We need tools and tips in order to keep everything moving and s...

25 Maalis 202546min

Declutter Your Life While Living with Chronic Illness

Declutter Your Life While Living with Chronic Illness

Do you find it difficult to find the time and energy to deal with mental or physical clutter? Lisa Zawrotny, a productivity coach and founder of Positively Productive Systems, helps us learn how to ma...

11 Maalis 20251h 4min

Behind the Scenes of About IBD

Behind the Scenes of About IBD

Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: ...

25 Helmi 202514min

Why Representation Matters for the LGBTQ+ Community

Why Representation Matters for the LGBTQ+ Community

There's a need for more research addressing social determinants of health in the inflammatory bowel disease (IBD) community. Cass Condray, an IBD researcher who also lives with an IBD, points out the ...

11 Helmi 202551min

How to Thrive as a Parent with IBD Featuring Jaime Holland

How to Thrive as a Parent with IBD Featuring Jaime Holland

Amber hands over hosting duties to Jamie Holland, a patient advocate with Crohn's disease. They discuss their personal experiences with inflammatory bowel disease (IBD). They focus on Amber's decision...

28 Tammi 202540min

Suosittua kategoriassa Terveys ja hyvinvointi

unicast
voi-hyvin-meditaatiot-2
rss-hanna-tikander
rss-pitaisko-erota
psykopodiaa-podcast
rss-narsisti
tiedenaiset-podcast
terapiassa
puhu-muru
junnut-pelissa
vakeva-elama-viisaampi-mieli-vahvempi-keho
meditaatiot-suomeksi
rss-kuumilla-aalloilla
rss-pt-paahtio
selviytyjat-tarinoita-elamasta
rss-kyykkya-ja-kuoharia
paaasia-podcast
fitnessvastaanotto
katilon-kahvitunti
rss-duodecim-lehti