#122: Living with MS in South Africa. Insights from Advocate & MSSA Vice-Chair Christelle Taute

#122: Living with MS in South Africa. Insights from Advocate & MSSA Vice-Chair Christelle Taute

In this powerful and heartfelt episode, I speak with Christelle Taute, Vice-Chair and Treasurer of the Multiple Sclerosis Society of South Africa (MSSA). Christelle shares her personal MS journey spanning over two decades, including her experience with a stem cell transplant, how she built resilience, and her passionate advocacy work in South Africa.

💚 Whether you're newly diagnosed, living with MS for years, or supporting someone with MS, Christelle's story offers hope, honesty, and practical insight.

👉 Full blog post with transcript:
https://ms-perspektive.com/122-christelle-taute

🔑 Topics covered
  • Christelle's MS diagnosis story and early challenges

  • Choosing (and delaying) treatment in the South African system

  • Undergoing aHSCT in 2015: how, why, and what changed

  • How gratitude and structure help her navigate daily symptoms

  • Her advocacy work with MSSA and participation in the May 50K

  • Thoughts on what needs to change in MS care in the future

  • Her wishes, goals, and advice to her younger self

🔗 Resources & Links mentioned 📬 Stay connected

If you enjoyed this episode, please share it with someone who might benefit and consider subscribing to the podcast for more personal MS stories and expert interviews.

💌 For more inspiration, visit ms-perspektive.com
📸 Follow along on Instagram: @ms.perspektive.international

See you soon and try to make the best out of your life,
Nele

For more information and positive thoughts, subscribe to my newsletter for free.

Click here for an overview of all podcast episodes published so far.

Tämä jakso on lisätty Podme-palveluun avoimen RSS-syötteen kautta eikä se ole Podmen omaa tuotantoa. Siksi jakso saattaa sisältää mainontaa.

Jaksot(181)

#179: Multiple Sclerosis without the noise. Dominic Shadbolt on 35 years with MS, treatment and real patient involvement

#179: Multiple Sclerosis without the noise. Dominic Shadbolt on 35 years with MS, treatment and real patient involvement

What does living with multiple sclerosis for 35 years teach you about treatment, disability, information and the role MS should have in your life? In this episode, I talk with Dominic Shadbolt, founde...

19 Elo 1h 5min

#178: Tai Chi and Qigong for MS: Supporting Balance, Movement and Body Awareness – Interview with Mirko Lorenz

#178: Tai Chi and Qigong for MS: Supporting Balance, Movement and Body Awareness – Interview with Mirko Lorenz

Tai Chi and Qigong can be gentle, adaptable ways to support balance, coordination, mobility and body awareness in people with multiple sclerosis. In this episode, I talk with Tai Chi instructor Mirko...

12 Elo 25min

#177: A First Diagnosis of Multiple Sclerosis: Symptoms, Tests, and Next Steps

#177: A First Diagnosis of Multiple Sclerosis: Symptoms, Tests, and Next Steps

What may be the first signs of multiple sclerosis? Which tests are needed to diagnose MS, and what happens after the diagnosis? In this episode, I speak with Dr Datzmann, Senior Consultant at the MS C...

5 Elo 22min

#176: Progressive MS Research: Milestones, Setbacks and Hope with Tim Coetzee

#176: Progressive MS Research: Milestones, Setbacks and Hope with Tim Coetzee

Progressive MS research has made important advances, but many questions about disability progression, biomarkers, treatment, and quality of life remain unanswered. In this episode, I speak with Tim Co...

22 Heinä 56min

#175: Multiple Sclerosis and Pain. How Exercise and Physical Activity Can Help

#175: Multiple Sclerosis and Pain. How Exercise and Physical Activity Can Help

Pain is one of the most common and life-impacting symptoms in multiple sclerosis. In this episode, Nele talks with Rasmus Christian Jungersen, PhD student at the Department of Exercise Biology at Aarh...

15 Heinä 1h 8min

#174: MS Treatment Access in Australia. Deanna and Rachel on Living with Multiple Sclerosis, Advocacy, and the Future of Ocrevus, Kesimpta & Briumvi

#174: MS Treatment Access in Australia. Deanna and Rachel on Living with Multiple Sclerosis, Advocacy, and the Future of Ocrevus, Kesimpta & Briumvi

Deanna Renee and Rachel Kerr speak about living with multiple sclerosis in Australia, the importance of lived experience in policy, and the current uncertainty around PBS access to Ocrevus and Kesimpt...

8 Heinä 41min

#173: Immunoadsorption for MS Relapses. Interview with senior physician Anna-Katharina Eser

#173: Immunoadsorption for MS Relapses. Interview with senior physician Anna-Katharina Eser

In this episode, I speak with Anna-Katharina Eser, senior physician at the MS Centre in Mainkofen, Germany, about immunoadsorption in multiple sclerosis. Immunoadsorption is a specialized blood purifi...

1 Heinä 15min

#172: AI for MS. How the CLAIMS Project Could Transform MS Care – with Prof. Friedemann Paul

#172: AI for MS. How the CLAIMS Project Could Transform MS Care – with Prof. Friedemann Paul

In this episode, Prof. Friedemann Paul from Charité – Universitätsmedizin Berlin, Germany, explains how the European CLAIMS project aims to improve multiple sclerosis care through AI-assisted decision...

24 Kesä 35min

Suosittua kategoriassa Koulutus

rss-murhan-anatomia
psykopodiaa-podcast
voi-hyvin-meditaatiot-2
rss-niinku-asia-on
rss-vapaudu-voimaasi
kesken
rss-liian-kuuma-peruna
leikitaanko-laakaria
rss-laadukasta-ensihoitoa
solu-ja-molekyylibiologian-perusteet
adhd-podi
puhutaan-koiraa
rss-synapselingo-opi-englantia
rss-palautumista-ilman-joogahousuja
rss-narsisti
rss-duodecim-lehti
aamukahvilla
rss-luonnollinen-synnytys-podcast
koulu-podcast-2
rss-arkea-ja-aurinkoa-podcast-espanjasta