Community In IBD: How to Stop Being Isolated Featuring Aaron Blocker
About IBD10 Syys 2025

Community In IBD: How to Stop Being Isolated Featuring Aaron Blocker

Episode transcript and more information at: https://bit.ly/AIBD184 Amber talks with Aaron Blocker, a Crohn's disease patient and advocate, about the importance of finding and creating community for people touched by IBD. Online and in-person groups offer support and serve as platforms to share practical tips and counter misinformation. Aaron points out that it's important to find a balance between advocacy, health, and personal life when offering support to others. Both emphasize the value of authenticity and learning from mistakes. The conversation stresses the importance of caring for mental health, the power of connection, and staying true to one's own reasons for taking part in community. Topics discussed on this episode:
  • Importance of community for people living with inflammatory bowel disease (IBD)
  • Challenges and rewards of sharing disease experiences online
  • Navigating negative comments and misinformation in online communities
  • Strategies for engaging with IBD communities and providing support
  • Balancing community involvement with personal health and family life
  • Mental health considerations when participating in online discussions
  • Importance of authenticity and passion in advocacy work
  • Addressing misinformation and promoting accurate health information within the community
Chapters:
  • 0:05 Intro & Sponsor
  • 1:23 Aaron's Background & Group Origin
  • 5:30 Power of Community
  • 8:08 Support in Community
  • 11:44 Getting Involved in IBD Communities
  • 15:16 Before Sharing Online
  • 16:15 Motivation & Authenticity
  • 19:10 Combating Misinformation
  • 25:20 Boundaries & Balance
  • 31:52 Mental Health & Selective Sharing
  • 34:55 Handling Criticism & Mistakes
  • 38:11 Referring Out & Collaboration
  • 39:18 Responding to Criticism
  • 40:13 Aaron's Socials & Closing
  • 41:53 Outro & Credits

Find Aaron Blocker at:

Find Amber J Tresca at:

Find Mac Cooney (mix, sound design, and theme music) at:

These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

Jaksot(200)

IBD and Somatic Therapy With Abri Bernstein

IBD and Somatic Therapy With Abri Bernstein

People with IBD are more likely to live with anxiety, depression, or other mood disorders than people who don't live with one of these conditions. For that reason, caring for mental health is as impor...

16 Huhti 202453min

Colorectal Cancer Awareness Month With Dan "Dry Dock" Shockley

Colorectal Cancer Awareness Month With Dan "Dry Dock" Shockley

Diagnosed with attenuated familial adenomatous polyposis (AFAP), retired Navy veteran Dan "Dry Dock" Shockley shares his remarkable journey of service, diagnosis, and advocacy. Following his diagnosis...

26 Maalis 202432min

Making Crohn's Disease Funny With Matt Nagin

Making Crohn's Disease Funny With Matt Nagin

We can hold two truths: Crohn's disease is funny. It is also not funny. I speak with Matt Nagin, who has many talents, but we focus on his work as a comedian and actor living with Crohn's disease. Our...

13 Helmi 202436min

Amber's Year in Books 2023

Amber's Year in Books 2023

What did you read over the past year? If you made a reading goal: did you hit it? The books I read in 2023 included biographies, fantasy, fiction, and romance. Plus, I had several authors who live wit...

30 Tammi 202425min

IBD Connect With Lisa Fournier

IBD Connect With Lisa Fournier

A diagnosis of inflammatory bowel disease (Crohn's disease, ulcerative colitis, IBD) affects the entire family. When it's a child that's diagnosed, it changes so many things and brings a host of chall...

16 Tammi 202436min

Post-Traumatic Stress Disorder and IBD With Stephanie Brenner, LCSW, MSW

Post-Traumatic Stress Disorder and IBD With Stephanie Brenner, LCSW, MSW

My guest is Stephanie Brenner of Chronic Illness Psychotherapy. Stephanie is a Licensed Clinical Social Worker who has experience in working with clients with chronic illnesses. She has also taken on ...

19 Joulu 202346min

IBD in the Hispanic Community With Oriana Damas, MD

IBD in the Hispanic Community With Oriana Damas, MD

As an assistant professor of medicine in the Division of Gastroenterology at the University of Miami Miller School of Medicine, and the Director of Translational Studies for the Crohn's and Colitis Ce...

5 Joulu 202339min

Positivity Beats IBD With Josef Miller

Positivity Beats IBD With Josef Miller

What is it like to be a teen living with Crohn's disease? If you're like Josef Miller, you channel the challenges of the diagnosis and management of IBD into action. Josef has written a book about his...

28 Marras 202339min

Suosittua kategoriassa Terveys ja hyvinvointi

unicast
voi-hyvin-meditaatiot-2
psykopodiaa-podcast
rss-pitaisko-erota
rss-hanna-tikander
rss-narsisti
tiedenaiset-podcast
terapiassa
vakeva-elama-viisaampi-mieli-vahvempi-keho
puhu-muru
meditaatiot-suomeksi
junnut-pelissa
rss-kuumilla-aalloilla
selviytyjat-tarinoita-elamasta
rss-pt-paahtio
aamukahvilla
paaasia-podcast
katilon-kahvitunti
rss-duodecim-lehti
rss-kyykkya-ja-kuoharia