Community In IBD: How to Stop Being Isolated Featuring Aaron Blocker
About IBD10 Syys 2025

Community In IBD: How to Stop Being Isolated Featuring Aaron Blocker

Episode transcript and more information at: https://bit.ly/AIBD184 Amber talks with Aaron Blocker, a Crohn's disease patient and advocate, about the importance of finding and creating community for people touched by IBD. Online and in-person groups offer support and serve as platforms to share practical tips and counter misinformation. Aaron points out that it's important to find a balance between advocacy, health, and personal life when offering support to others. Both emphasize the value of authenticity and learning from mistakes. The conversation stresses the importance of caring for mental health, the power of connection, and staying true to one's own reasons for taking part in community. Topics discussed on this episode:
  • Importance of community for people living with inflammatory bowel disease (IBD)
  • Challenges and rewards of sharing disease experiences online
  • Navigating negative comments and misinformation in online communities
  • Strategies for engaging with IBD communities and providing support
  • Balancing community involvement with personal health and family life
  • Mental health considerations when participating in online discussions
  • Importance of authenticity and passion in advocacy work
  • Addressing misinformation and promoting accurate health information within the community
Chapters:
  • 0:05 Intro & Sponsor
  • 1:23 Aaron's Background & Group Origin
  • 5:30 Power of Community
  • 8:08 Support in Community
  • 11:44 Getting Involved in IBD Communities
  • 15:16 Before Sharing Online
  • 16:15 Motivation & Authenticity
  • 19:10 Combating Misinformation
  • 25:20 Boundaries & Balance
  • 31:52 Mental Health & Selective Sharing
  • 34:55 Handling Criticism & Mistakes
  • 38:11 Referring Out & Collaboration
  • 39:18 Responding to Criticism
  • 40:13 Aaron's Socials & Closing
  • 41:53 Outro & Credits

Find Aaron Blocker at:

Find Amber J Tresca at:

Find Mac Cooney (mix, sound design, and theme music) at:

These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

Jaksot(200)

Designer $hit: A Microbiome Love Story With Saffron Cassaday

Designer $hit: A Microbiome Love Story With Saffron Cassaday

What options are you wiling to try to manage your ulcerative colitis or Crohn's disease? How about putting someone else's stool into your own colon? Fecal microbiota transplants (FMTs) — using stool f...

14 Marras 202327min

Coping With IBD While in Military Service With Dr Anish Patel

Coping With IBD While in Military Service With Dr Anish Patel

What do all the new oral drugs available for treating IBD have to do with military service? Being diagnosed with IBD might mean leaving the military for some service members. Part of the reason is tha...

8 Marras 202344min

Learning to Accept IBD

Learning to Accept IBD

Being diagnosed with a chronic condition is a major adjustment. Digestive conditions like IBD (Crohn's disease and ulcerative colitis) wind up affecting every part of our lives. Learning to accept the...

24 Loka 202328min

IBD and Menopause

IBD and Menopause

Menopause is a topic that's not well understood in general and there's even less information when it comes to menopause and inflammatory bowel disease (IBD, Crohn's disease and ulcerative colitis). Oc...

17 Loka 202314min

Having a Screening Colonoscopy

Having a Screening Colonoscopy

Colon cancer is being diagnosed more frequently in younger people. It's now recommended that most people get a screening colonoscopy at the age of 45. For people who have a family history of colon ca...

26 Syys 202339min

Managing IBD Diet and Lifestyle With Clemmie Oliver

Managing IBD Diet and Lifestyle With Clemmie Oliver

Diet does matter in inflammatory bowel disease (IBD). Not only in how it affects the digestive system, but also in overall health. Adults with IBD have greater incidences of heart disease, lung diseas...

12 Syys 202351min

Where to Invest Money: Healthcare Disparities in IBD

Where to Invest Money: Healthcare Disparities in IBD

Inflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrou...

8 Elo 202321min

We Have to Invest in the Health Wealth of Our Nation With Brooke Abbott: Healthcare Disparities in IBD

We Have to Invest in the Health Wealth of Our Nation With Brooke Abbott: Healthcare Disparities in IBD

Healthcare is political. That's why it's important to push legislators to ensure care is available and accessible to all patients, regardless of their socioeconomic status. Brooke Abbott, of the Crazy...

1 Elo 202343min

Suosittua kategoriassa Terveys ja hyvinvointi

unicast
voi-hyvin-meditaatiot-2
psykopodiaa-podcast
rss-pitaisko-erota
rss-hanna-tikander
rss-narsisti
tiedenaiset-podcast
terapiassa
vakeva-elama-viisaampi-mieli-vahvempi-keho
puhu-muru
meditaatiot-suomeksi
junnut-pelissa
rss-kuumilla-aalloilla
selviytyjat-tarinoita-elamasta
rss-pt-paahtio
aamukahvilla
paaasia-podcast
katilon-kahvitunti
rss-duodecim-lehti
rss-kyykkya-ja-kuoharia