#11 - Interview With Filmmaker Owen Kent

#11 - Interview With Filmmaker Owen Kent

SMA News Today Community Editor Kevin Schaefer interviews Owen Kent, a filmmaker who has SMA. Kevin and Owen met at the 2018 CureSMA Conference in Dallas about his SMA diagnosis and experience with the disease, as well as his next, upcoming film project.

Jaksot(443)

Evrysdi Approved in Brazil for Spinal Muscular Atrophy (SMA)

Evrysdi Approved in Brazil for Spinal Muscular Atrophy (SMA)

SMA News Today’s multimedia associate, Price Wooldridge, discusses Evrysdi’s approval in Brazil for Spinal Muscular Atrophy (SMA). Are you interested in learning more about spinal muscular atrophy? I...

6 Marras 20205min

Spending Time In & Out Of You Chair So You Give Your Body The Balance It Requires & Managing Stress

Spending Time In & Out Of You Chair So You Give Your Body The Balance It Requires & Managing Stress

Forums Director Kevin Schaefer talks about spending time in and out of his chair, in order to give his body the balance it requires. DeAnn Runge talks about a podcast she did with Kevin Schaefer as w...

4 Marras 20206min

#69 - Interview With Lamondre Pough

#69 - Interview With Lamondre Pough

In this episode, host Kevin Schaefer talks with LaMondré Pough from Columbia, South Carolina. Lamondré is a public speaker, consultant, and advocate for people with disabilities. He currently serves a...

3 Marras 202048min

PAN Foundation Offers Financial Help for SMA Treatment & Routine Changes As Winter Sets In

PAN Foundation Offers Financial Help for SMA Treatment & Routine Changes As Winter Sets In

SMA News Today’s multimedia associate, Price Wooldridge, discusses how people living with Spinal Muscular Atrophy (SMA) can apply for financial help for treatment to the PAN Foundation. DeAnn Runge ...

2 Marras 20206min

Adults With SMA Who Sought Specialty Care After Spinraza Approval May Have More Severe Disease

Adults With SMA Who Sought Specialty Care After Spinraza Approval May Have More Severe Disease

SMA News Today’s multimedia associate, Price Wooldridge, discusses Adults with SMA who have sought specialty care after Spinraza’s approval, may have more severe disease. Are you interested in learni...

30 Loka 20206min

Embracing The Imaginative Spirit of Halloween & Cold Feet, JACO Robotic Arm and Caregivers

Embracing The Imaginative Spirit of Halloween & Cold Feet, JACO Robotic Arm and Caregivers

Forums Director Kevin Schaefer reads from one of his older columns about embracing the imaginative spirit of Halloween. Plenty of conversations are happening in the forums. In her recent column Brian...

28 Loka 20207min

‘Think 3 at 3 Months’ Drive Seeks to Raise Awareness of Infant Movement Milestones & PCA Services

‘Think 3 at 3 Months’ Drive Seeks to Raise Awareness of Infant Movement Milestones & PCA Services

SMA News Today’s multimedia associate, Price Wooldridge, discusses the “Think 3 at 3 Months” drive, seeking to raise awareness of infant movement milestones that, if missed, could mean Spinal Muscular...

26 Loka 20207min

SMA Type 3 Adults May Have Issues Regulating Component of Cell’s ‘Skeleton,’ Study Suggests

SMA Type 3 Adults May Have Issues Regulating Component of Cell’s ‘Skeleton,’ Study Suggests

SMA News Today’s multimedia associate, Price Wooldridge, discusses SMA Type 3 adults may have issues regulating a component of cell’s cytoskeleton, according to a study. Are you interested in learnin...

23 Loka 20206min

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