Angelman Syndrome Foundation Podcast

Behavior and Anxiety in Angelman Syndrome

Share Your Feedback or Recommend New Topics Christopher Keary, MD, Behavioral Director at the MGH Angelman Syndrome Clinic, and Cesar Ochoa-Lubinoff, MD, MPH, ASF Clinic Director at Cedars-Sinai, offe...

16 Loka 202448min

Miles For Smiles w Deanna McCurdy

Share Your Feedback or Recommend New TopicsInspiring mother, advocate and runner, Deanna McCurdy, talks with CEO Amanda Moore about uniting her passion and purpose to create Team Miles for Smiles.+ + ...

3 Loka 202456min

Genotypes: A Conversation with Parents

Share Your Feedback or Recommend New TopicsASF CEO Amanda Moore talks with parents of individuals with AS about the various genotypes and their experiences with how each genotype presents. + + +Learn ...

19 Syys 20241h 7min

Adults & Caregiver Support

Share Your Feedback or Recommend New TopicsParent of an 28-year-old daughter with Angelman syndrome, Robin Wilkerson discuss the importance of community and how to support adults.+ + +Learn more about...

18 Syys 202335min

An Interview With Angie Kim, Best-Selling Author

Share Your Feedback or Recommend New TopicsNew York Times best-selling author Angie Kim discusses her new heart-wrenching thriller book "Happiness Falls" and the character Eugene who has Angelman synd...

29 Elo 20231h 4min

Seizure Control & Diet in AS

Share Your Feedback or Recommend New TopicsDiet is so important to controlling seizures individuals with AS. Learn more about the ketogenic diet from Mass General Hospital dietician Heidi Pfeifer.+ + ...

9 Elo 202331min

Financial Planning Q&A

Share Your Feedback or Recommend New TopicsCaring and planning for the future of a family member with special needs is often overwhelming. Mary Anne Ehlert from Protected Tomorrows answers common fina...

25 Heinä 20231h 34min