Angelman Syndrome Foundation Podcast

Angelman Syndrome Foundation Podcast

Welcome to the Angelman Syndrome Foundation community! In each episode, Amanda Moore, CEO of Angelman Syndrome Foundation, will discuss Angelman syndrome with experts in their field to provide resources and education to families. From a deep dive into the genetics of Angelman syndrome, to understanding clinical treatments for treating seizures to discussions with IEP specialists and communication specialists, we are here to help as many families as possible on this journey. We are so glad you have joined us and look forward to connecting and supporting this community together.

Tämä podcast on lisätty Podme-palveluun avoimen RSS-syötteen kautta eikä se ole Podmen omaa tuotantoa. Siksi podcastin jaksot saattavat sisältää mainontaa.

Jaksot(38)

All Things Seizures

All Things Seizures

Share Your Feedback or Recommend New TopicsDr. Ron Thibert, ASF Clinician at Massachusetts General Hospital, discusses everything families need to know about seizures in Angelman syndrome.+ + +Learn m...

11 Heinä 20231h 27min

AS Medical Care For All Ages

AS Medical Care For All Ages

Share Your Feedback or Recommend New TopicsIn this previously recorded conversation, listen to medical experts answer commonly asked questions about medical care.+ + +Learn more about Angelman Syndrom...

26 Kesä 20231h 13min

Angelman Dads

Angelman Dads

Share Your Feedback or Recommend New TopicsFathers discuss everything there is to know about being a dad to a child with Angelman syndrome.+ + +Learn more about Angelman Syndrome Foundation at Angelma...

12 Kesä 20231h 8min

Clinical Trials in AS

Clinical Trials in AS

Share Your Feedback or Recommend New TopicsIn this previously recorded conversation, listen to a Q&A moderated by Dr. Elizabeth Jalazo about exciting clinical trial news.+ + +Learn more about Angelman...

30 Touko 20231h 7min

We Are Single Caregivers

We Are Single Caregivers

Share Your Feedback or Recommend New TopicsTwo single mothers of children with Angelman syndrome discuss what help looks like for them.+ + +Learn more about Angelman Syndrome Foundation at Angelman.or...

15 Touko 202334min

AS Clinical Experts Panel

AS Clinical Experts Panel

Share Your Feedback or Recommend New TopicsIn this previously recorded webinar, listen to an "ask all, tell all" session with four Angelman syndrome clinical experts.+ + +Learn more about Angelman Syn...

1 Touko 20231h 22min

How Diet Therapy Saved My Son

How Diet Therapy Saved My Son

Share Your Feedback or Recommend New TopicsParent Lizzie Sordia describes how the ketogenic diet eventually stopped her son's seizures. Learn more about Diet Therapy: Angelman.org/articles/diet-therap...

1 Joulu 202210min

Newly Diagnosed 101

Newly Diagnosed 101

Share Your Feedback or Recommend New TopicsTwo mothers join Amanda to discuss their newly diagnosed journey and early signs of Angelman syndrome in their children.+ + + Learn more about Angelman Syndr...

31 Loka 202248min

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