Hacking Hypermobility

Hacking Hypermobility

Hi! We’re Luna and Shelli, also known as The Two Bendy Mommas. We talk about the lived experience of those affected by the inherited connective tissue disorders, and its intersection with neurodiversity, elevating marginalized and intersectional voices for our community. Please note: Hacking Hypermobility is produced in its entirety by three disabled women in various stages of life and parenting adventures. New episodes are typically released biweekly from January through July.

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Jaksot(45)

29: A Mysterious New Year

29: A Mysterious New Year

Surprise! The Bendy Mommas have a little treat for you to welcome 2025. Good riddance, 2024!New episodes resume on International Zebra Day, January 31

1 Tammi 202512min

28: Pediatric Hypermobility

28: Pediatric Hypermobility

Welcome back to Hacking Hypermobility! This week's episode is all about pediatric hypermobility. Shelli and Luna are diving into how hypermobility impacts children and teenagers, the pediatric diagnos...

1 Elo 202438min

27: Why Get Diagnosed? - Part Two

27: Why Get Diagnosed? - Part Two

On this week's episode, the Two Bendy Mommas continue to discuss why they think it’s a smart idea to use your spoons to get diagnosed. They discuss some of the the benefits of going through the diagno...

18 Heinä 202444min

26: Why Get Diagnosed?

26: Why Get Diagnosed?

On this week's episode, the Two Bendy Mommas discuss why they think it’s a smart idea to use your spoons to get diagnosed. They discuss some of the the benefits of going through the diagnostic journey...

11 Heinä 20241h 18min

25: Hypermobile Dudes Part 3: The Conclusion

25: Hypermobile Dudes Part 3: The Conclusion

This week, Luna, Shelli, and our special guest panel members Brandon Buccieri (@susanpossibly), Doug Kremer (@DougKrem) and Bryan Jewell (@kindaspoony) wrap up their discussion on how Hypermobile Ehle...

27 Kesä 202446min

24: Patient Advocacy & Insurance

24: Patient Advocacy & Insurance

We're back this week with the final segment of our interview with Megan Karanfil to dive deeper into her role as a patient advocate, how advocates can help, and why they're so important to patients, e...

13 Kesä 202426min

23: Hypermobile Dudes Part 2: An Interview Panel With Three Men With hEDS

23: Hypermobile Dudes Part 2: An Interview Panel With Three Men With hEDS

The Bendy Mommas continue to look into understanding the intersectionality of Hypermobility by talking to some Bendy Dudes. We gathered a panel of men with Hypermobile Ehlers-Danlos Syndrome (hEDS) to...

30 Touko 202443min

22: The Conversation With a Patient Advocate, Part 3

22: The Conversation With a Patient Advocate, Part 3

Two episodes in one day? Why not? We're back this week with Part 3 of our interview with Megan Karanfil to dive deeper into her role as a patient advocate, how advocates can help, and why they're so i...

23 Touko 202437min

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